WHAT IS CP
CEREBRAL PALSY
My attempt to clarify CP you may find the information provided by NINDS is more specific and detailed

TREATMENT of  CP
There are many different treatments and I only name those I am familiar with

Physical Therapy
How it is essential to maintain range of motion

Occupational Therapy
How it is essential to maintain quality of life

Speech Therapy
What I know through my experience By far not even close to what you should know

Medication and Orthotics
Again what I know through experience Much more can be had searching the net or talking with doctors and therapists

CP LINKS
To Federal, State, County, City / Town and School District WebPages. Health links and hopefully links to local disability sites and activity and events calendars just drill down to the page you want

Cerebral Palsy Glossary
Terms used when referring to items related to CP . Many of us may see these on a doctors report and not know what it really means.

More Information of CP provided by NINDS
Perhaps a bit more concise and informed than my attempt to tell of what CP is. 
What Causes Cerebral Palsy?
What are the Risk Factors?
Can Cerebral Palsy Be Prevented?
What Are the Different Forms?
What Other Conditions Are Associated With Cerebral Palsy?
How Does a Doctor Diagnose Cerebral Palsy?
How is Cerebral Palsy Managed?
What Specific Treatments Are Available?
Drug Treatments
Surgery
Orthotic Devices
Assistive Technology
Alternative Therapies
Are There Treatments for Other Conditions Associated with Cerebral Palsy?
Do Adults with Cerebral Palsy Face Special Health Challenges?
What Research Is Being Done?
Where can I get more information?

Specific Neurological Disorders
Many of these do not fall under the heading of CP but are disabilities nonetheless.

My take on the IEP, IDEA 2004 (Public Law 94-142 & Public Law 101-476), and the 504 plan.
In 1990, changes to Public Law 94-142 arrived through the Education of the Handicapped Act Amendments of 1990 (Public Law 101-476). Most apparent was the law’s name change – instead of the Education of the Handicapped Act, it is now called the Individuals with Disabilities Education Act. IDEA 2004

IEP overview
A Guide to the Individualized Education Program with sections highlighted and comments by me

504 plan & IDEA Q&A
Protecting Students and others with Disabilities also a list of accommodations and modifications as would relate to the school environment.  More on accommodations in the Parent and Educator Guide Appendix E

Parent & Educator Guide of 504 Plan concepts and real life accommodations. Drafted by the OSPI and 5 Puget Sound area School Districts but would be a valuable asset to any fighting for their child's 504 accommodations anywhere U.S.A. 

IDEA 2004 summary&
Title 1 IDEA as written (Public Law 94-142 & Public Law 101-476) 
A lot of legalese and unless you are a lawyer or are looking for specific law probably will not be of much benefit. You will better spend your time reading the Parent and Educator Guide, the IEP overview and the 504 plan & IDEA Q&A

Washington State Chapter 392-172 WAC SPED special education and the IEP
This is Washington State law as regards the IEP and special education
Also a bit about our (current Nov 08) personal battle for Amber

FORUMS (BBS)
Registration is required but please use the forums to ask and receive answers as well as post your needs or what help you can provide

LIVE CHAT

MEMBER PAGES
Those who have joined with me to try to educate everyone of the trials of having a child with CP or other disability and where to find information

Pierce County Events
Local events for the disabled If you know of any let me know I'll post them here

CONTACT US

DONATIONS/GIFTS

AMBER'S STORY
Amber's story from birth to I started this website. Her continuing story is in the Blog

AMBER'S PARENTS
A bit about us and maybe you will get to know why we did what we did and continue to do what we do by knowing a bit about us.

Blog of Amber and Family
The continuing story of Amber and family updated as I have time.

SHARE YOUR STORY
This is different from the Forums as the Forums are where you would post questions and answers.
In the share your story section people like you will post their unique experiences and through what is said you may find you are not alone. You may also find a friend and someone you can relate to. And possibly a way to realize your own goals.

CP FAMILY LINKS
Websites created by people who have CP or someone in their family has CP. Net-etiquette applies. All sites are subject to approval. Banners and text allowed on these links.

NON CP RELATED
OTHER LINKS PAGES
Posted 1st come 1st served. We hope to have many of our friends  and supporters post their pages here. Net-etiquette applies. 
All sites are subject to approval. All Non-CP links are text only with a line or two of information of the link posted.
Please notify me of any broken links so I can remove or fix them. 

JOIN OUR NETWORK
Join with me in trying to educate the public of CP and other disabilities

WHY THIS SITE?
What motivated me to build this site

  CONTACT US
Direct your comments to Robert.

Robert wrote a Science Fiction trilogy while being laid up. It took 4 years to complete and he has for sale Book 1 of the trilogy HERE

He is awaiting editing and copyrights on books 2 & 3 before sending them to the publisher. Book 1 can stand alone and is a complete novel of 237 pages and 135,000+ words in PDF format.

Making Money Online (or not) 
What I've tried and what I believe. The things to watch out for.  Many with disabilities have a very difficult time working a 9 to 5 so working online is a viable alternative. However be wary of those who will take your money and not deliver any worthwhile information.

Other sites I have or to be more precise the wife has and I take care of.

www.tamicraft.com 

www.vintageslips4u.com

Where to start?

    In other parts of this site I’ve talked of the birth and the therapies and the lawsuit so there is no need to go into this any further. I think I will talk of her development and the trials she had to face and in some way you may get a feel for her personality and how we coped as well as how she coped with her disabilities but … Where to start?
    Ok. I’m just going to start blabbering and maybe something will be of some use to others in our situation.

    There were problems with the birth and of course not having had a child before and not having been around one with Cerebral Palsy (CP) we were in total confusion as to what to do. The Doctors would give us recommendations, which we followed up on religiously. We sought out extra therapies and took her to a lot of different Doctor’s. Some wouldn’t take our insurance and we paid out of pocket. We were concerned as any parent would be and we tried to provide in every way possible. Amber never was neglected when it came to just about anything and especially when it came to her care. I worked harder or sold assets to pay for things like the gymnastics, ballet, a neurologist that wouldn’t take our insurance. Whatever it was, we found a way to provide it. The wife spent a lot of time taking her to therapy and Doctor’s appointments and other activities. At one point she was running 6 days a week to one thing or another.

    When Amber was old enough to understand she wasn’t the same as her peers, we never once let on that she had CP. We told her that everyone was different in some way. Mom wore glasses cause she couldn’t’ see very well, dad took lots of medications cause his health was not good, grandpa walked with a cane cause his legs didn’t work well, and she had herself seen other kids in wheelchairs or on crutches at therapy. Even when she was in preschool and elementary we would point out that most everyone had a visible disability of some sort and even those in which it wasn’t apparent, there was most likely something that made them different. Being different was OK and just the way things were. I think for the most part she accepted this, at least till she started Middle School and couldn’t make the cut on all the sports she tried out for.

    When she was about 5 she was diagnosed with Children’s Rheumatoid Arthritis (CRA). Her joints would swell and cause her a great deal of pain. We took her to a specialist at Children’s Hospital in Seattle and she was placed on several medications. I think these may have interfered with the meds she was taking for seizures cause she hadn’t had any seizures in quite a while. Then when she was on the bus going to school one morning she happened to have one. It freaked out the bus driver and us too to some extent. We’d seen her have seizures before so knew it was not something that could be corrected with a magic pill, still we were very much put off by the neurologist ‘s office not seeing her right away. They wanted to make an appointment some 3 months out. The wife was livid and she told me we were going to see the Doctor. We gathered up Amber and headed for Seattle a little less than 2 hours away, with traffic. When we got there we were told he was in a meeting and Tami just lost it and started yelling at the receptionist. But no amount of yelling was going to get us in to see the Doctor. Eventually he came out and said that he was in a meeting with other clients and if we couldn’t control ourselves we could find another Doctor cause he wasn’t going to have this behavior in his office. Tami apologized and I tried to explain our concern and all he did was tell the receptionist to try and schedule us in as soon as she could, and then went back to his meeting or patient or whatever he was doing.

    When we were able to see him some 10 days later, he first told us he had more than enough patients and that he would not tolerate another outburst as he had witnessed on our last being there. If we couldn’t control ourselves we could find another neurologist. Tami was contrite and apologized again. Not that we felt we had done anything wrong. When you are fighting for your child you have to do what you have to do. But this neurologist was recognized as being one of the best on the West Coast (he should have been at $500.00 an hour, which we paid for as he wouldn't take our insurance) and we didn’t want to go to the other neurologist we had seen when Amber was a baby. That one may have had a license to practice on his wall but practice is what we felt he was doing. This neurologist at least made us feel as if he knew what he was doing and we weren’t prepared to let personal feelings get in the way of Amber’s care. Her medications were adjusted and over time the seizures were under control again.

    Money became a much bigger issue when I lost my business due to health problems. We had to consolidate our assets to get out of debt. Our income was cut drastically to the point we could no longer afford health insurance. We found out about the States Basic Health Plan and applied. There was a waiting list but eventually we got on. The benefit was it saved us over $500.00 a month in premiums. I think at the time we got on we only had to pay about $135.00 a month for the entire family. I was amazed but they did not count assets when figuring eligibility, just income, and so we qualified. The downfall was they didn’t cover a lot that our previous insurance did so we wound up paying more out of pocket expenses. We eventually had to find a new neurologist anyway as we couldn’t afford the one we had and he still wouldn’t accept our insurance. We eventually were able to get the kids on Basic Health Plus, which meant we didn’t have to pay for them at all and they were covered for vision and dental now as well. A load off our minds but as with everything inflation meant we were actually paying more for just the wife and I. I think  we paid $135.00 a month just for the wife and I even though the kids were now being covered without cost to us. The kids were covered under the Plus plan, a Medicaid benefit. Another benefit was they paid for more therapies and such but as Amber was getting older we were seeing less and less improvement as a result of therapy and so were actually cutting back on therapy. And the insurance did not pay for braces so that was about $6000.00 out of pocket, which placed us in the negative for a bit when Amber was about 14 years old.

    Tami started a Girl Scout Troop when Amber was in Grade school, to get Amber involved with other children. She became a leader and recruited about 8 kids maybe a bit more. They had their weekly meetings plus other activities and Amber made some friends. We had Amber in every sport there was available through the school and a lot through the County Rec. centers. She was getting lots of physical activity so we dropped some of her therapy time. She was now going only twice a week instead of 4 times a week and the Therapists were OK with that. Amber has grown very attached to the Therapists and they have just been amazing not only in the work they do but in the way they have let Amber be a part of their lives.
    You have to keep in mind we had a son too. 3 years younger than Amber who also needed attention. Though we did seem to spend a lot more time with Amber we still tried to spend as much as we could with our son. We got him involved with sports at the Rec. center as well but as he was a different age the times of his activities did not always lend themselves to an easy schedule. Many times I had to run one child while Tami ran the other to various activities, therapies and appointments.

    Tami eventually became a Cub Scout leader for our son and about 10 boys. Between Girl Scouts, Cub Scouts, activities and appointments she was constantly on the go. I eventually got her to slow down and in time Amber did not want to be in Girl Scouts anymore so Tami pawned the troop off on another parent and eventually our son grew up and went into Boy Scouts with other troop leaders so she was able to slow down (for awhile). Still she kept running the kids to activities and Amber to therapy. She volunteered at the school a lot, spending every Tuesday there doing the laminating for the week and helping out in the classrooms and going in whenever needed.

    Amber had a difficult time in school academically. The kids had not reached an age where she was being shunned socially but her academic performance was well below par. We spent a lot of time doing homework with her and if she had no homework we spent an hour a day in studies. It was a rule. 1 hour a day, no matter what, in study of some subject (mostly math) and then she could go out and play. So, as to not have it look like we were singling her out, we made the same commitment of our son. Still, even with the extra help, Amber received an IEP and was placed in Special Education classes. We insisted she be allowed to be in her regular class for most of the day and either the Special Ed teacher would go to the class and help her or she would spend no more than an hour in Special Ed classes. We did this cause we wanted her to have the social interaction with the other kids and so she would not feel as if she was so totally different from them that she couldn’t even be in the same class as her peers. Had this not worked out we would have had no choice, but it did work, and I think Amber benefited from this compromise. We continued to make school work a priority and she began to do much better.

    Amber had the idea she was going to be a bus driver when she was in first grade but by second grade had decided that she wanted to be a teacher. That has not changed to this day. Her goal in life is to be a grade school teacher and she has devoted every bit of her studies with that goal in mind. We kept harping on her that if this is what she really wanted that her grades HAD to be A’s and B’s and nothing less. She loved school and even homework. She was willing to put in whatever time it took to get those grades. What we didn’t know at the time was that she was being graded on effort and not test results. So she was getting A’s and B’s but in reality her test scores would have been C’s and D’s if not a complete Fail, if they had graded on test scores alone. This would continue through Middle School and believe me it did her no favors cause when she hit High School she hit a wall. More on this later.

    Amber was a very happy child in grade school. She had plenty of friends who had not, as yet, started looking at her disabilities as being an impediment to friendships. She was involved in all sports as in grade school there is no trying out for the team, everyone is eligible. Though she was not the best player in any given sport she was allowed her time in the games. She was involved in lots of other activities and we did our best to provide our kids with those things we felt necessary for their development. Even though we as parents had to make sacrifices along the way. I didn’t go to the dentist for years and when I did I had the tooth pulled, as it was thousands of dollars cheaper than having it fixed. The wife would only get new glasses when her old ones would give her headaches. We hit the thrift stores for everyday clothing and shoes and eventually started going to the food bank to make ends meet. But the kids have never gone without.

    But you can’t buy happiness, as the Beatle’s so eloquently put it. When Amber started Middle School she was not able to make the cut for any athletic teams. She was very disappointed. Many a tear was shed. We tried to bolster her spirits but this was not something we had any control over. Amber found out about the reality of her disabilities too. Many who had been her friends in grade school were now reluctant to be seen with her. Kids can be cruel. We encouraged her to make new friends and have sleepovers and we paid for Tae-kwon-Do as a way to continue exercise, as she no longer had sports and as a way to have social interaction with kids her age. She fell into a well of despair and concentrated on her schoolwork as a way to shut out the world. But even here she was vulnerable as the Middle School teachers graded her on effort not test scores. Setting her up for one of the most devastating things to happen to her in her life since the stroke.

    The 9th grade here is considered High school level though you are still in the Middle school. A friend of ours suggested she try out for the High School drill team. This friend had a daughter that had been on the drill team some years earlier and though she was not at all happy with the Coach she said her daughter had really enjoyed the experience. Amber was willing to do anything to be a part of the school activities and so was very much interested in joining. She and the wife approached the Coach and the wife explained in detail, Amber’s handicaps. The Coach said that so long as she was able to do the routines she saw no problem having Amber on the team, though she may not be able to be in the competitions, she would most likely be at the games and parades. Amber was thrilled.

    Amber spent most of her free time going over the routines. We parted with a few dollars to buy some essentials to be on the team and the Coach provided an old uniform that had to be taken in. But Amber was going to be on the “Drill Team”. She was so excited it was all she could talk about. She went to all the practices and practiced for hours here at home. Because of her left hemiplegia she couldn’t straighten her arm out all the way and couldn’t kick as high but she worked her ass off trying to get better. She had a determination to succeed and she was not going to be denied. But though she got the routines down and was at least as good as some on the team she was becoming ever so much more despondent about the drill team. All she wanted was to be a part of something that had to do with the school. The drill team was to be that relationship with the school she so desperately wanted.

    Still Amber was ever becoming more and more despondent. When asked why, she would not say. I think she felt herself to blame. It turned out that Amber was having to practice by herself in a corner, not allowed in the line up. That the Coach had been yelling at her on several occasions. That even when someone was missing Amber was not allowed to fill the empty spot even though she knew the drills. The Coach would either leave the spot empty or stand in the place not doing anything so the others could practice without having a missing or open spot. Amber was bold enough that on one occasion when the Coach wasn’t looking she jumped into an open spot and started doing the routine. The Coach apparently got very upset with her and yelled at her. She was dismissed as if she wasn’t even there. Told to practice on her own, off to the side. Never included. And the clincher came that when they were to perform at games and such. Amber was left to warm the benches. Not allowed to participate. Amber and the wife had been told that Amber may not be allow to participate at competitions as they were being scored on performance but that she would be able to participate at games and parades and such. This never happened. Amber was devastated. 

    Eventually through a river of tears she told us of what was happening. She said she could do the routine as well as many on the team but was not allowed to even practice with them, having to do so in a corner by herself. She told us of having been yelled at and not being able to participate at games and parades. The wife went to a practice to see for herself and actually thought Amber better than some on the team. Though not perfect she was by far better that at least 3 girls who had spots on the team. We told Amber we would have a talk with the Coach but Amber would not let us, saying she just wanted to quit. We found out later it was her fear of the Coach that was at issue. Not knowing this we told her she could do as she liked that we were not going to force her to stay on the drill team. She decided to quit and said that she didn’t want us involved. She wanted to do it on her own. So she planed to quit right at the end of practice so mom would be there to pick her up. It must have taken a lot of courage to go through an entire practice and then get up in front of everyone and announce she was quitting the team. Story I got was she got everyone’s attention and then announced her intention to quit the team. I believe she apologized to the team and thanked them for their support, although I later found out only a hand full had actually made her feel welcome, more there was that didn't. But not to antagonize the Coach (whom she feared) she never mentioned her as the deciding factor. She then ran out of the room before the tears overcame her and she fell to the floor as the emotion hit her and started crying. Eventually she made her way out to the car and mom comforted her and brought her home.

    We hadn’t gotten involved as Amber wanted to handle this herself. But I’m here to tell you it took everything I had not to get involved. When she quit I had my chance. I was so pissed off at the Coach and what had been done to Amber that the next day I called the VP at the High School for an appointment. I also wrote a lengthy letter of how I felt she had been mistreated and discriminated against and that if I had the funds I would have brought suit against the School for this blatant act of discrimination. I detailed everything that happened from what I was told by Amber and her mom and I gave a copy of the letter to the VP when we met and sent copies to the School district. The VP said he would check into it and a few days later called us in to talk. He said he’d had a talk with the Coach and if Amber wanted to rejoin the team she would be allowed to do so. Amber felt that my having made an issue of it and with the friction that was already there, that she would rather not. I do not know what was said to the Coach, if anything, and I do not know if anything has changed. I’ve heard through the grapevine that nothing has but this is hearsay. 

    Later when Amber went to High School in the 10th grade she was unwilling to get hot lunch. You need to know that being low income my kids qualify for free hot lunch through the school but Amber continued to take cold lunch from home. I wondered why and after several attempts to find out Amber eventually said that the Coach worked in the lunchroom and she feared an encounter. I was livid to say the least. Not at Amber, though I knew or at least thought, she was old enough to overcome this fear, but at the Coach for having traumatized my daughter so much that she felt so uncomfortable of a confrontation she was afraid to even have hot lunch. I immediately contacted the VP at the school and set up a meeting. I voice my disgust of the situation and demanded something be done. I stated I knew that a lot of the responsibility rested with my daughter to get over it, but I also stated that my daughter should not have to feel as if getting a hot lunch is going to lead to a confrontation. Again the VP said he would look into it and a plan was hatched that the VP would go to lunch with Amber and that he would smooth over any problems. As it turned out the Coach/Lunch lady was not on the serving line so nothing was ever said between Amber and the Coach. Several weeks later Amber met the Coach at a game when she went to talk with those she knew on the drill team and the Coach said “Hi’ and was cordial. (Perhaps the VP had a talk with her or she was just being polite) After this Amber got the courage to get hot lunch and to date nothing has been said to me that would indicate there are any problems, but I do know Amber still dislikes the Coach. And still takes her lunch on most day's. She has confessed to me that she still has some reservations of the Coach and prefers not to have an encounter. Though she no longer fears it as she once did.

    Academically hitting High school was another hurdle. As mentioned earlier Amber was being graded on effort not test results. She graduated Middle school with a 3.792 GPA. That’s about an A or A- average. 4.0 being a solid A and 3.0 a solid B. She gets to High school and they place her in remedial 8th grade math. Having seen the report cards from middle school we knew this to be a mistake. Amber had graduated Algebra 1 with an A-. There was no way she should be in remedial math, and 8th grade remedial math at that. So another appointment at the school this time her Counselor. I brought her 9th Grade report card with me. The Counselor seemed to think it was a mistake as well till he got on his computer and found the reason. Apparently the District had reviewed her test scores and felt she needed remedial classes in math. Amber was devastated. 

    The class was filled with a bunch of kids that had no interest in school and disrupted the class all the time. Now not to be harsh but the teacher was fairly new. This was his second year as a teacher and his first in a High school setting. He had no control of the class. Not only was Amber berating herself for being in remedial math but she also felt she could not learn anything in this class because of the disruptive nature of it. Amber became very hard to live with. Depressed and talking of wanting to either quit school or kill herself. We never thought for a moment she was serious but one must follow through when hearing such talk. I contacted the school psychologist and told him the situation. His comment to me was, Quote: “ I’m paid through the Special Education Funds and as such your daughter is really none of my concern. But I will get in touch with the VP (he actually said the name Mr.____) and I’ll have a talk with Amber if we decide it is necessary” End Quote. Can you believe the nerve???? I wanted to go down and kick his ass into next year. To my knowledge he has never had a talk with Amber and thank God for small favors. I’d hate to think what this asshole would have had to say to her especially when he kept saying that Quote. “Special Education Classes are not a bad thing. This could benefit Amber” End Quote. Now don’t get me wrong, I think Special Education has its place and Amber did her time in Special Education. But remedial math was devastating to Amber and it was not the best of times to tell her SPED is a good thing. As for the remedial math…The school was unwilling to even let her retake Algebra 1 so I had to fight the system again.

    Some of this is repeated on the Fighting the System page but I do not know how to convey the details without going over some things again. I was unable to get anywhere with the Counselor and another woman who popped in and heard of what was happening. She said there was nothing to be done, as this had come down from the District offices. The Counselor deferred to her as apparently she outranked him. Though he said he would check into it, I wasn’t about to wait. First I talked with the teacher then set an appointment with the VP. When I got home I typed up an email explaining Amber’s situation and asking if any knew how we could effect some sort of change. At least get Amber out of this disruptive class but my goal was to at the very least get her into Algebra 1 and repeat the course. I sent this email to 56 different people from the VP of the school, to the District, to the State Superintendent of Education, (OSPI) to my state congressmen and senators, to the office of the Lt, Governor and the Governors office and to my representative in the US Congress. I also sent it to every advocacy group I could find on the net, WA-PAVE, Parent to Parent, TACID, Do-it at UW, United Cerebral Palsy Of Puget Sound, and many others as well as DSHS, DDD, and DOH. My letter was not asking that any actually get involved but that they give me the information I needed to advocate for my daughter.

    I got a lot of feedback. Most just well wishes, some with a tidbit of useful information. I made phone calls to those who had replied or to those I was told to contact. I must say here that of the governmental offices I sent this to, I got very little help. As these are elected officials in public service I want you to know who did what. Here I can name, names.

    First the only local district Congressman to reply was the office of Jim McCune. An aide named Amy Cruver was very helpful in pointing me in the right direction and helping me to brainstorm ideas. Representative Campbell and Senator Rasmussen never replied. 

 (update 15 May 2008. Apparently someone found this website and informed Rasmussen and Campbell that they were mentioned on this site. I got a call May 14 2008 from Michelle Burheimer at Rasmussen's office and was told they never received the original email and apologized profusely and said they would do whatever they could to help. To late to do anything now, the school year was almost over and you can't un-ring a bell. And so though we talked several minutes maybe even an hour nothing was set into motion. I told the assistant that should I have a problem in Ambers 11th grade year I would be in touch. Later that evening I got a call directly from Representative Tom Campbell and he also said he never received the email and apologized but when I stated I had sent the email via the Legislative websites 'email your congressman' form on the site so I knew it was sent and that I had copy and pasted the email so no chance of their being a typo and I never received a Mailer Daemon stating the email had not been delivered and that perhaps someone in his office had not forwarded it to him, well he became very defensive and profusely reiterated he had not received the email. I can't say if either Rasmussen or Campbell did or did not. All I can say is I sent the email through the States Legislative website email form and never got a Mailer Daemon that the email was undeliverable. You decide for yourself what to believe. At any rate Campbell said he would be there for me if I needed anything that was in his power to give. I sent him an email after our conversation and here is an excerpt, sent that evening of May 14th, right after our talk on the phone:

Make a secure donation/gift through Paypal by clicking on the link below:

Or you can make a donation manually by following one of the steps below.

Donations/Gifts are graciously accepted, Just log on to www.Paypal.com , Click "Send Money" tab and follow the instructions to send money from an existing Paypal account or by any major Credit Card. Use the email address below to make a Donations/Gifts on Paypal.

 

If you do not see an email address it is because you need to enable javascripts. The email is in javascript to foil the spambots.

You can also mail a Donation/Gift to 

Tami Taormina

P.O. Box 4463 

Spanaway, WA. 98387 

    Now ALL these pages are open to the public. As such you agree that you are at least 18 years of age when submitting any posts. That you agree and consent that any pictures you send are open source and that You will not hold me or this site liable for any damages whatsoever. That any contact you make with others through this site are solely your responsibility and you in no way will hold this site or me or any person or entity liable in any way for any damages that might occur by your use of this site and the various posts, chat and forums available. If you do not agree to any of these terms then do not use this site.

I cannot force any to use the forums but I would encourage you to do so if you have questions you would like answers to or have a statement you would like to make. I know that having to register and using the anti-spambot code makes you have to do one more step than most, but it also insures that the forums are not bombarded by spambots posting crap on the site. I try to check the forums at least weekly (often daily) and I have to say that so far I am disappointed that none have chosen to take advantage of this free opportunity to get and give information. I built this site to help the disabled get information and the use of the forums and sharing your stories is a huge part of that endeavor. Please help one another and I will try to answer what I can as well. We are a community of the disabled or parents of disabled children and we should do whatever we can to help each other gain the upper hand or help each other cope with difficult situations. Just go to the forums page and write down the anti-spambot question and enter it on the registration page. You only need do this once to have full access to the forums.

 

If you have a site that deals with any disabilities then consider either joining CPFSN.org  (it is totally free) and having a link to your site on the appropriate page (e.g. State, County) as well as the ‘Members’ page or doing a simple link exchange and having your site appear on the ‘CP Family’ links page, if you or your child has CP or any disability.

 

If you do not have CP or a child with CP or have a site devoted to any disability you can still have a reciprocating link placed on the Non-CP related links page. A link exchange would not only show your support of this site but would increase your ranking with search through having another outside link (SEO).

 

Use the ‘Contact Us’ page and email Robert if you are interested in any link exchange or joining CPFSN.org. Send the information of the site you want us to link to and the code you would like entered. I cannot guarantee that all requests will be honored but I will take a personal look and make a fair and unbiased decision.

 

LINUX Web Hosting plans
I use a Windows XP PC with a Linux hosting plan.

 

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