Cerebral Palsy
Family Support Network TM
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Cerebral Palsy Family Support TM |
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The forums are a place where we can post
questions and receive answers and also a place for us to come
together as a community of those with children having Cerebral
Palsy or other disabilities and help each other. Few will be
able to understand just where your coming from but those who
have been there. Our experience may help you avoid the pitfalls
and our knowledge may help you find solace. Let us be a
community that cares for more than just ourselves and our
problems and let us reach out to help another.
Alphabetical listing of
most pages on this site: Exceptions
will be state and county pages. Some are not linked from
this sidebar but from within a page
The CP Links Page is
where you will find most Federal, State and local County pages. How it is essential to maintain range of motion How it is essential to maintain quality of life What I know through my experience By far not even close to what you should know and Orthotics Again what I know through experience Much more can be had searching the net or talking with doctors and therapists CP LINKS Cerebral Palsy Glossary More Information of CP provided by NINDS Specific Neurological
Disorders My take on the IEP,
IDEA 2004 (Public Law 94-142 & Public Law 101-476), and the 504 plan. IEP overview 504 plan & IDEA Q&A
Parent & Educator Guide of 504 Plan concepts and real life accommodations. Drafted by the OSPI and 5 Puget Sound area School Districts but would be a valuable asset to any fighting for their child's 504 accommodations anywhere U.S.A. IDEA 2004 summary& Washington State Chapter 392-172 WAC
SPED special education and the IEP FORUMS (BBS)
MEMBER PAGES
Pierce County Events
AMBER'S STORY In the share your story section people like you will post their unique experiences and through what is said you may find you are not alone. You may also find a friend and someone you can relate to. And possibly a way to realize your own goals. Websites created by people who have CP or someone in their family has CP. Net-etiquette applies. All sites are subject to approval. Banners and text allowed on these links. NON CP RELATED All sites are subject to approval. All Non-CP links are text only with a line or two of information of the link posted. Please notify me of any broken links so I can remove or fix them. Join with me in trying to educate the public of CP and other disabilities What motivated me to build this site Direct your comments to Robert. Robert wrote a Science Fiction trilogy while being laid up. It took 4 years to complete and he has for sale Book 1 of the trilogy HERE He is awaiting editing and copyrights on books 2 & 3 before sending them to the publisher. Book 1 can stand alone and is a complete novel of 237 pages and 135,000+ words in PDF format. Making Money Online (or not) Other sites I have or to be more precise the wife has and I take care of.
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Cerebral Palsy and Disability Posts
Please read TOS before using the forums. Registration is required to post in any forum. I check forums daily for spam and delete spam and ban user. You will need this code to register:
No you can't copy and paste, as it is a .gif. Another spambot security measure and it makes the human element have to do a bit more. Sorry for the inconvenience but until they come out with more Mods ; This is the best I can do to keep spambots off the site and slow the human element. It is case sensitive. Write it down as you see it and enter it in the appropriate box on the registration page. Enter the forum Here: Don't forget your registration code. These forums are new as of April 5, 2008 so please post so as to draw interest. An empty forum does no one good Enter here: CPFSN Forums (BBS)A place to share our knowledge and ask questions. Hopefully a place to get answers. I am doing my level best to grow a community of people with similar circumstances or interests so as to aid in finding needed information and just to have someone to talk with of things we can't easily deal with. I have posted our story as well as a running blog of our plight. I do not expect any others to do the same but would hope that you will use the forums to get and give help as well as send in a story or two of some experience that could be of use to others in achieving their goals or needs. As soon as I work out the kinks I will be posting a form so that you can easily send in any comments. Till I do use the forums or the email on the contact us page.
As to the spambot code; I will be changing the code every so often and putting it in different places. Once registered you will not need the code again unless you try to register under another IP, username and email. Which you will if you are a human spammer and I ban your IP, Email and Username as well as delete your profile from the database. One cannot get rid of Spam totally. There are those who insist on getting their website URL in the memberslist so they get higher search rankings or the occasional click. I delete these from the database as well, but many who post the garbage do not care their efforts are in vain. Most are paid to post and so they do so without any thought of just how little time their post will be on the site. With but one Mod that basically is directed at Spambots there will be the occasional human Spammer. Eventually they will come out with Mods that will make their efforts useless as well. Till then I will be online daily to remove these objectionable posts and delete them from the members list. Despite what it says in the TOS I am not overly tough on posts. I do allow a lot of leeway as I too have been angered to the point of wanting to kick some ass. Just be aware that should you slander any person or organization it is you that will pay the consequences. We take no responsibility for any post and though we try to keep the forums free of spam we do not try to censor your rants and raves. Those of you who have had experience with dealing with the system and can offer advice we would appreciate your doing so. We would also encourage you to post your knowledge or write an article or an email to be posted on the site that can benefit others with similar problems. Those of you who just want to be able to talk with others and share your problems and advice I would suggest you take the time to make a post. Many will not use the forums if there does not seem to be any activity. Your posting will encourage others to do the same and soon a community will be born. I will be monitoring and try to be of assistance whenever I can. Thank you.
TOS This has changed over time and some may be repeated or inclusive of other TOS agreements within the Forum. Simple net-etiquette is all I ask . You will be warned if I get complaints and booted if they become a problem but hey, we are a community and we should be able to get along. If you want to curse the Rants Forum is not monitored, at least not for that. By entering the forums you agree that you are at least 18 years of age and will not hold www.cpfsn.org or any persons or entities connected with www.cpfsn.org liable for anything whatsoever. The opinions expressed in the forums are those of the poster not of any connected with this site. We only provide the forum we do not provide the content. When you get to the Forums read the register information.
NO INSULTING OTHER USERS POSTING IN THE FORUM I provide the Forums but have no knowledge of what is said in them unless I am monitoring. Even so the opinions expressed within any Chat, Forum or Post on this site is that of the person doing so and not me. Neither I nor any person or entity assume any liability whatsoever of what is said or posted or of any consequence thereof. If you don't agree to this then do not use the services. By using the services you agree that you are at least 18 years of age and agree that any consequence of using these services are born by you. If you do not agree then do not use the services. Now I have no way of knowing age of the person. So I am entrusting you to be honest. I don't mind kids chatting. I just do not want it to come back on me if something happens. There are sites available specifically designed for kids that have monitored Chat Rooms. As Parents it is your responsibility to ensure the safety of your child. I would suggest you monitor your kids and send them to these protected Chat sites. If you let them Chat here I won't be held responsible. Simple as that. I can ban users and will if I get complaints. I will not tolerate any Racial, Sexually Oriented or threatening content and will immediately ban a user for such stuff. Also if I can't read it, it goes. Sorry but all I know is English so if you post in a foreign language, I will delete it, as I do not know what it says. Also this short hand text crap that the kids use today, well I don't get that either, so it goes as well. Read the full agreement below. And that on the registration page. If you wish to lodge a complaint I need forum, date, time, user name, and any other info you can provide so as to track the person and delete the post and/or ban them. I would like at least one other as witness to whatever the complaint is about If the post was removed. You need scripts enabled to see the email address. Email
TOS (continued) This has changed over time and some may be repeated or inclusive of other TOS agreements within the Forum.
By accessing “Cerebral Palsy Family Support Network” (hereinafter
“we”, “us”, “our”, “Cerebral Palsy Family Support
Network”, “http://cpfsn.org/forum”), you agree to be legally bound
by the following terms. If you do not agree to be legally bound by all of
the following terms then please do not access and/or use “Cerebral Palsy
Family Support Network”. We may change these at any time and we’ll do
our utmost in informing you, though it would be prudent to review this
regularly yourself as your continued usage of “Cerebral Palsy Family
Support Network” after changes mean you agree to be legally bound by
these terms as they are updated and/or amended. If you do not agree to the above then do not use the service. Remember that you are not anonymous; you must be a member of the Forums in order to use them. Logs are maintained. The server keeps files and can identify your IP. We reserve the right to use this information for the purpose of control of the forums and/or forward this information to any law enforcement agency or ISP if we deem it necessary. IE: Threats against others we feel may have merit. Most often the user will merely be banned for an abuse. Email is required. You can hide your profile from other users. This action was taken as most users of the open forum abused the privilege by posting ads where they were not allowed or posted obscene material. Even implementing this necessary step does not insure users will not abuse the forums. Rest assured that any that abuse the forums will be banned.
While the administrators and moderators of this forum will attempt to remove or edit any generally objectionable material as quickly as possible, it is impossible to review every message in a timely manner. Therefore you acknowledge that all posts made to these forums express the views and opinions of the author and not the Owners, administrators, moderators or webmaster (except for posts by these people) and hence will not be held liable. I strongly suggest you do not encourage spammers by just not clicking on any link in such post. We will eventually delete the post and ban the user as well as delete their profile from the database.
You agree not to post any abusive, obscene, vulgar, slanderous, hateful, threatening, sexually-oriented or any other material that may violate any applicable laws and/or the TOS. Doing so may lead to you being immediately and permanently banned (and your service provider being informed). The IP address of all posts is recorded to aid in enforcing these conditions. You agree that the webmaster, administrator and moderators of this forum have the right to remove, edit, move or close any topic at any time should they see fit. As a user you agree to any information you have entered above being stored in a database. While this information will not be disclosed to any third party without your consent, unless a violation need be reported to a law enforcement agency or by Court order, the webmaster, administrator and moderators cannot be held responsible for any hacking attempt that may lead to the data being compromised.
This forum system uses cookies to store information on your local computer. These cookies do not contain any of the information you have entered; they serve only to improve your access to the site. The e-mail address is used for confirming your registration details and password (and for sending new passwords should you forget your current one).
OK now that all the legalese is out of the way I just want to say that we really are a community. We can help each other more than outsiders can help us in most instances. Most really good information I got was from others who had children with disabilities. People who had been through what I was going through and shared their experience and their advise. I'm asking that you please do as much for those who post in the Forums. They are asking for your help. It is not an easy thing to do sometimes. Show them the respect they deserve and give them the answers they need if you have any. Thank You
The List of topics We basically had to start over with 0 posts cause I had to take the forums down because of spammers
If you have an idea of a topic you would like to have listed let me know.
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Donations/Gifts are graciously accepted, Just log on to www.Paypal.com , Click "Send Money" tab and follow the instructions to send money from an existing Paypal account or by any major Credit Card. Use the email address below to make a Donations/Gifts on Paypal.
If you do not see an email address it is because you need to enable javascripts. The email is in javascript to foil the spambots. You can also mail a Donation/Gift to Tami Taormina P.O. Box 4463 Spanaway, WA. 98387
ALL these pages are open to the public. As such you agree that you are at least 18 years of age when submitting any posts. That you agree and consent that any pictures you send are open source and that You will not hold me or this site liable for any damages whatsoever. That any contact you make with others through this site are solely your responsibility and you in no way will hold this site or me or any person or entity liable in any way for any damages that might occur by your use of this site and the various posts, chat and forums available. If you do not agree to any of these terms then do not use this site.
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