Cerebral Palsy Family Support TM

Most of you will find the information contained on the pages linked below of more use, unless the exact law is what you need and not an interpretation of the various aspects of the law and how it might be used to your benefit.

The CP Links Page is where you will find most Federal, State and local County pages.

WHAT IS CP
CEREBRAL PALSY
My attempt to clarify CP you may find the information provided by 'NINDS' (below) is more specific and detailed

TREATMENT of  CP
There are many different treatments and I only name those I am familiar with

Physical Therapy
How it is essential to maintain range of motion

Occupational Therapy
How it is essential to maintain quality of life

Speech Therapy
What I know through my experience By far not even close to what you should know

Medication and Orthotics
Again what I know through experience Much more can be had searching the net or talking with doctors and therapists

CP LINKS
To Federal, State, County, City / Town and School District WebPages. Health links and hopefully links to local disability sites and activity and events calendars just drill down to the page you want

Cerebral Palsy Glossary
Terms used when referring to items related to CP . Many of us may see these on a doctors report and not know what it really means.

• What Causes Cerebral Palsy?

• What are the Risk Factors?

• Can Cerebral Palsy Be Prevented?

• What Are the Different Forms?

• What Other Conditions Are Associated With Cerebral Palsy?

• How Does a Doctor Diagnose Cerebral Palsy?

• How is Cerebral Palsy Managed?

• What Specific Treatments Are Available?

• Drug Treatments

• Surgery

• Orthotic Devices

• Assistive Technology

• Alternative Therapies

• Are There Treatments for Other Conditions Associated with Cerebral Palsy?

• Do Adults with Cerebral Palsy Face Special Health Challenges?

• What Research Is Being Done?

• Where can I get more information?

Here is a synopsis / summary of this lengthy Act.

(This 'Act' is Public Domain)

The reauthorized Individuals with Disabilities Education Act (IDEA) was signed into law on Dec. 3, 2004, by President George W. Bush. The provisions of the act became effective on July 1, 2005, with the exception of some of the elements pertaining to the definition of a “highly qualified teacher” that took effect upon the signing of the act. The final regulations were published on Aug. 14, 2006. This is one in a series of documents, prepared by the Office of Special Education and Rehabilitative Services (OSERS) in the U.S. Department of Education that covers a variety of high-interest topics and brings together the regulatory requirements related to those topics to support constituents in preparing to implement the new regulations.1 This document addresses significant changes from preexisting regulations to the final regulatory requirements regarding IEPs. 

IDEA Regulations

1. Revise general requirements for the content of IEPs. 

As used in Part 300, the term individualized education program or IEP means a written statement for each child with a disability that is developed, reviewed, and revised in a meeting in accordance with 34 CFR 300.320 through 300.324, and that must include:
· A statement of the child's present levels of academic achievement and functional 
performance…
· A statement of measurable annual goals, including academic and functional goals
designed to:
o Meet the child's needs that result from the child's disability to enable the child to be involved in and make progress in the general education curriculum; and
o Meet each of the child's other educational needs that result from the child's disability;
· For children with disabilities who take alternate assessments aligned to alternate 
achievement standards, a description of benchmarks or short-term objectives;
· A description of:
o How the child's progress toward meeting the annual goals described in 34 CFR 300.320(a)(2) will be measured; and
o When periodic reports on the progress the child is making toward meeting the annual goals (such as through the use of quarterly or other periodic reports, concurrent with the issuance of report cards) will be provided;

· A statement of the special education and related services and supplementary aids and 
services, based on peer-reviewed research to the extent practicable, to be provided to the child, or on behalf of the child…
· A statement of any individual appropriate accommodations that are necessary to measure 
the academic achievement and functional performance of the child on State and districtwide assessments consistent with section 612(a)(16) of the Act; and if the IEP Team determines that the child must take an alternate assessment instead of a particular regular State or districtwide assessment of student achievement, a statement of why the child cannot participate in the regular assessment and why the particular alternate assessment selected is appropriate for the child….
[34 CFR 300.320(a)] [20 U.S.C. 1414(d)(1)(A)(i)]

2. Revise requirements for the content of IEPs relating to transition services.

Beginning not later than the first IEP to be in effect when the child turns 16, or younger if determined appropriate by the IEP Team, and updated annually thereafter, the IEP must include:
· Appropriate measurable postsecondary goals based upon age-appropriate transition 
assessments related to training, education, employment, and, where appropriate, independent living skills; and 
· The transition services (including courses of study) needed to assist the child in reaching 
those goals.
[34 CFR 300.320(b)] [20 U.S.C. 1414(d)(1)(A)(i)(VIII)(aa) and (bb)]

3. Clarify requirements regarding transfer of rights.

Beginning not later than one year before the child reaches the age of majority under State law, the IEP must include a statement that the child has been informed of the child’s rights under Part B of the Act, if any, that will transfer to the child on reaching the age of majority under 34 CFR 300.520.
[34 CFR 300.320(c)] [20 U.S.C. 1414(d)(1)(A)(i)(VIII)(cc)]

4. Include a rule of construction regarding the content of IEPs.

Nothing in 34 CFR 300.320 shall be construed to require:
· That additional information be included in a child’s IEP beyond what is explicitly 
required in section 614 of the Act; or
· The IEP Team to include information under one component of a child’s IEP that is 
already contained under another component of the child’s IEP.
[34 CFR 300.320(d)] [20 U.S.C. 1414(d)(1)(A)(ii)]

5. Set forth requirements for IEPs when children with disabilities transfer from one 
public agency to another.

If a child with a disability (who had an IEP that was in effect in a previous public agency in the same State) transfers to a new public agency in the same State, and enrolls in a new school within the same school year, the new public agency (in consultation with the parents) must provide a free appropriate public education (FAPE) to the child (including services comparable to those described in the child’s IEP from the previous public agency), until the new public agency either:
· Adopts the child’s IEP from the previous public agency; or
· Develops, adopts, and implements a new IEP that meets the applicable requirements in 
34 CFR 300.320 through 300.324.
[34 CFR 300.323(e)] [20 U.S.C. 1414(d)(2)(C)(i)(I)]

If a child with a disability (who had an IEP that was in effect in a previous public agency in another State) transfers to a public agency in a new State, and enrolls in a new school within the same school year, the new public agency (in consultation with the parents) must provide the child with FAPE (including services comparable to those described in the child’s IEP from the previous public agency), until the new public agency:
· Conducts an evaluation pursuant to 34 CFR 300.304 through 300.306 (if determined to be necessary by the new public agency); and 
· Develops, adopts, and implements a new IEP, if appropriate, that meets the applicable requirements in 34 CFR 300.320 through 300.324.
[34 CFR 300.323(f)] [20 U.S.C. 1414(d)(2)(C)(i)(II)]

To facilitate the transition for a child described in 34 CFR 300.323(e) and (f):
· The new public agency in which the child enrolls must take reasonable steps to promptly 
obtain the child’s records, including the IEP and supporting documents and any other records relating to the provision of special education or related services to the child, from the previous public agency in which the child was enrolled, pursuant to 34 CFR 99.31(a)(2) [Family Educational Rights and Privacy Act regulations regarding conditions under which prior consent is not required to disclose information]; and
· The previous public agency in which the child was enrolled must take reasonable steps to 
promptly respond to the request from the new public agency.
[34 CFR 300.323(g)] [20 U.S.C. 1414(d)(2)(C)(ii)]

 

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If you have a site that deals with any disabilities then consider either joining CPFSN.org  (it is totally free) and having a link to your site on the appropriate page (e.g. State, County) as well as the ‘Members’ page and the disabilities links page.

Or doing a simple link exchange and having your site appear on the ‘CP Family’ links page, if you or your child has CP or any disability. Your site does not have to be about any disability so long as you or your child has a disability.

If you do not have a disability or a child with a disability but have a site devoted to any disability you can have a reciprocal link placed on the disability links page

If you do not have a disability or have a site devoted to any disability you can still have a reciprocating link placed on the Non-CP other links page. A link exchange would not only show your support of this site but would increase your ranking with search through having another outside link (SEO).
  
Use the ‘Contact Us’ page and email Robert if you are interested in any link exchange or joining CPFSN.org. Send the information of the site you want us to link to and the Title and information as well as the URL you would like entered. I cannot guarantee that all requests will be honored but I will take a personal look and make a fair and unbiased decision.

To speed up the process have a link to my site on yours and send me the URL. Our preferred links can be found on any of our links pages (left nav-bar)

 

 

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