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State of Washington

RULES FOR THE PROVISION OF SPECIAL EDUCATION TO SPECIAL EDUCATION STUDENTS

Chapter 392-172 WAC

This is a publication of Special Education Operations, Office of Superintendent of Public Instruction (OSPI), and developed under the Individuals with Disabilities Education Act (IDEA) federal grant and may be reprinted without permission.

This material is available in alternative format upon request. Contact Special Education at (360) 725-6075, TTY (360) 586-0126, or speced@ospi.wednet.edu. The OSPI complies with all federal and state rules and regulations and does not discriminate on the basis of race, color, national origin, sex, disability, age, or marital status.

April 2002

Green are my specific comments and Yellow are highlighted entries

( These rules apply to Washington State residents though I am sure each State would have similar regulations in place)


SITEMAP 

Alphabetical listing of most pages on this site: Exceptions will be state and county pages. Some are not linked from this sidebar but from within a page

The CP Links Page is where you will find most Federal, State and local County pages.

THE HOMEPAGE

WHAT IS CP
CEREBRAL PALSY

My attempt to clarify CP you may find the information provided by NINDS is more specific and detailed

TREATMENT of  CP
There are many different treatments and I only name those I am familiar with

Physical Therapy
How it is essential to maintain range of motion

Occupational Therapy
How it is essential to maintain quality of life

Speech Therapy
What I know through my experience By far not even close to what you should know

Medication and Orthotics
Again what I know through experience Much more can be had searching the net or talking with doctors and therapists

CP LINKS
To Federal, State, County, City / Town and School District WebPages. Health links and hopefully links to local disability sites and activity and events calendars just drill down to the page you want

Cerebral Palsy Glossary
Terms used when referring to items related to CP . Many of us may see these on a doctors report and not know what it really means.

More Information of CP provided by NINDS
Perhaps a bit more concise and informed than my attempt to tell of what CP is. 
What Causes Cerebral Palsy?
What are the Risk Factors?
Can Cerebral Palsy Be Prevented?
What Are the Different Forms?
What Other Conditions Are Associated With Cerebral Palsy?
How Does a Doctor Diagnose Cerebral Palsy?
How is Cerebral Palsy Managed?
What Specific Treatments Are Available?
Drug Treatments
Surgery
Orthotic Devices
Assistive Technology
Alternative Therapies
Are There Treatments for Other Conditions Associated with Cerebral Palsy?
Do Adults with Cerebral Palsy Face Special Health Challenges?
What Research Is Being Done?
Where can I get more information?

Specific Neurological Disorders
Many of these do not fall under the heading of CP but are disabilities nonetheless.

My take on the IEP, IDEA 2004 (Public Law 94-142 & Public Law 101-476), and the 504 plan.
In 1990, changes to Public Law 94-142 arrived through the Education of the Handicapped Act Amendments of 1990 (Public Law 101-476). Most apparent was the law’s name change – instead of the Education of the Handicapped Act, it is now called the Individuals with Disabilities Education Act. IDEA 2004

IEP overview
A Guide to the Individualized Education Program with sections highlighted and comments by me

504 plan & IDEA Q&A
Protecting Students and others with Disabilities also a list of accommodations and modifications as would relate to the school environment.  More on accommodations in the Parent and Educator Guide Appendix E

Parent & Educator Guide of 504 Plan concepts and real life accommodations. Drafted by the OSPI and 5 Puget Sound area School Districts but would be a valuable asset to any fighting for their child's 504 accommodations anywhere U.S.A. 

IDEA 2004 summary&
Title 1 IDEA as written (Public Law 94-142 &
Public Law 101-476) 
A lot of legalese and unless you are a lawyer or are looking for specific law probably will not be of much benefit. You will better spend your time reading the Parent and Educator Guide, the IEP overview and the 504 plan & IDEA Q&A

Washington State Chapter 392-172 WAC SPED special education and the IEP
This is Washington State law as regards the IEP and special education
Also a bit about our (current Nov 08) personal battle for Amber

MEMBER PAGES
Those who have joined with me to try to educate everyone of the trials of having a child with CP or other disability and where to find information

Pierce County Events
Local events for the disabled If you know of any let me know I'll post them here

CONTACT US

DONATIONS/GIFTS

AMBER'S STORY
Amber's story from birth to I started this website. Her continuing story is in the Blog

AMBER'S PARENTS
A bit about us and maybe you will get to know why we did what we did and continue to do what we do by knowing a bit about us.

Blog of Amber and Family
The continuing story of Amber and family updated as I have time.

SHARE YOUR STORY
This is different from the Forums as the Forums are where you would post questions and answers.
In the share your story section people like you will post their unique experiences and through what is said you may find you are not alone. You may also find a friend and someone you can relate to. And possibly a way to realize your own goals.

CP FAMILY LINKS
Websites created by people who have CP or someone in their family has CP. Net-etiquette applies. All sites are subject to approval. Banners and text allowed on these links.

NON CP RELATED
OTHER LINKS PAGES
Posted 1st come 1st served. We hope to have many of our friends  and supporters post their pages here. Net-etiquette applies. 
All sites are subject to approval. All Non-CP links are text only with a line or two of information of the link posted.
Please notify me of any broken links so I can remove or fix them. 

JOIN OUR NETWORK
Join with me in trying to educate the public of CP and other disabilities

WHY THIS SITE?
What motivated me to build this site

  CONTACT US
Direct your comments to Robert.

Robert wrote a Science Fiction trilogy while being laid up. It took 4 years to complete and he has for sale Book 1 of the trilogy HERE

He is awaiting editing and copyrights on books 2 & 3 before sending them to the publisher. Book 1 can stand alone and is a complete novel of 237 pages and 135,000+ words in PDF format.

Making Money Online (or not) 
What I've tried and what I believe. The things to watch out for.  Many with disabilities have a very difficult time working a 9 to 5 so working online is a viable alternative. However be wary of those who will take your money and not deliver any worthwhile information.

Other sites I have or to be more precise the wife has and I take care of.

www.tamicraft.com 

www.vintageslips4u.com

 

Rather than Copy the entire text here, I am placing a link to this information. Below is my personal battle for Amber which is ongoing at the time of this writing.

Click Here for the entire text in PDF

http://www.kent.k12.wa.us/ksd/ss/PDF/wac_392_172.pdf 

FYI - This document is 130 pages long but in order for you to really be an effective advocate for your child you should read most all of it. There are many sections that just deal with legalese bull, but a lot more that will have a direct relationship to your ability to fight for your child. Many can summarize the highlights but in order to really be informed you should read the entire text.

Now having said that I have entered some of the text that you will find in the PDF file here. I have also highlighted that part of the text that you should pay special attention to. Now not everything I have placed here will pertain to your child and some that does I have not included here. What I have included are items that pertain to my child or those I felt were of such import that they should be given special attention.

WAC 392-172-020 Purposes. (1) The purposes of this chapter are to: (a) Implement chapter 28A.155 RCW consistent with the Individuals with Disabilities Education Act, 20 United States Code section 1400 et seq.; (b) Ensure that all special education students as defined in this chapter have available a free appropriate public education (FAPE) that emphasizes special education and related services designed to meet their unique needs and prepare them for employment and independent living; (c) Ensure that the rights of special education students and their parents are protected; (d) Assist school districts and other public agencies to provide special education and related services; and (e) Assess and ensure effectiveness of the public agencies responsible for providing special education pursuant to chapter 28A.155 RCW, including state residential education programs established and operated pursuant to chapter 28A.190 RCW, state schools for the deaf and blind established and operated pursuant to chapter 72.40 RCW, and education programs for juvenile inmates established and operated pursuant to chapter 28A.193 RCW. (2) School districts and other public agencies must be aware that there are additional federal and state civil rights regulations (29 US Code 764, RCW 49.60.030, 43 USC 12101 et seq.) that apply to students who have a disability regardless of the student's eligibility for special education and related services. If a student has a physical, sensory, or mental impairment which substantially limits one or more major life activities, the district or other public agency has an obligation to provide that student appropriate educational services. Such services must be designed to meet the needs of the student with a disability to the same extent the needs of students without disabilities are met. A school district and other public agency's obligation to provide appropriate educational services to meet the needs of a student who has a disability exists separate and apart from the obligation to provide a free appropriate public education to a student who qualifies for special education and any necessary related services under these regulations.

This highlighted section is very important as it allows for your child to receive services even if they do not meet the qualifications under an IEP provided they meet the qualifications of the aforementioned laws that are on the books. In Amber's case she meets the Qualifications of DSHS under DDD for both physical handicaps and a mental IQ of 67 which is more than 2 standard deviations below the norm. She also meets the qualifications of the 504 plan of the ADA in several categories.

WAC 392-172-030 Students’ rights to special education programs. (1) Each school district, other public agency, and residential schools operated pursuant to chapters 28A.190 and 72.40 RCW shall provide every eligible special education student between the age of three and twenty-one years, a free appropriate public education program, including special education for students who have been suspended or expelled from school. A free appropriate public education is also available to any eligible student even though the student is advancing from grade to grade. The right to special education for eligible students commences on their third birthday with an individualized education program (IEP) in effect by that date. If an eligible student's third birthday occurs during the summer, the student's individualized education program team shall determine the date when services under the individualized education program will begin.

Amber was doing quite well and was receiving passing grades in all her regular classes. In fact she even passed the reading and writing parts of the WASL. The school personnel would constantly state that as she has passed the WASL and was receiving passing grades she did not qualify. According to people I talked with at OSPI (Office of Superintendent of Public Instruction ) Though the IEP team may take these into account they CANNOT be used as the sole criteria for denial of eligibility. The IEP team MUST consider all available information to include but not limited to Physiological tests, Physical abilities, Mental abilities, Social abilities, Learning Disabilities and any Special Circumstances.

WAC 392-172-055 Related services.

(2) The terms used in the definition of "related services" are defined as follows:

(a) "Classified staff services" includes:

(i) Services provided by classified staff which provide for the student’s safety, personal care, and instructional assistance; and

(ii) Services provided to certificated staff by classified staff which provide assistance for special education students to achieve placement in the least restrictive environment.

Now we were never seeking that Amber be under an IEP (SPED) in High School, all we wanted was for the school to acknowledge that she had a Learning Disability and some physical problems. We felt both could be handled through the 504 plan but as we were stonewalled in getting the Non-Verbal Learning Disability (NLD) accommodations we wanted; namely verbal testing and verbal reading of material to her (or books on tape) we had to go forth with the IEP. 

Under the law however the school should have made the accommodations of verbal assignments and tests and less homework and test questions to take into account her NLD. We were never seeking a lowering of the standards to achieve a better grade only accommodations to allow Amber to show she was proficient in the subject matter with or through verbal testing and less questions on the test so she would not be forced to stay up past midnight doing homework and stressing over tests that increased her Dystonia and therefore her pain.

Through conversations with people at OSPI and at WA-PAVE I was told that these accommodations were well within the scope of the 504 plan and should have been implemented, but the schools IEP team saw otherwise and so we have to fight for Amber and get the IEP done so she would qualify under "instructional assistance" and still be placed in regular classes "least restrictive environment".

If you have a look at the Parent & Educator Guide of the 504 plan It is clear that these services are available under a 504. However you also have to realize that there is little incentive for the school to provide much under a 504. The reason is twofold . 

Number 1 is money.

 Though the Feds mandate the 504 they do not provide any funding and so the school district has to eat these costs. Many choose not to. Under an IEP and SPED the school can apply for and get Federal funding for many Accommodations like PT, OT, Student Aide, Special instruction or Tutoring and more. They also receive funding just because your child is in SPED with an IEP, whether they do anything or not. 

And 2nd. 

There is little enforcement when it comes to a 504 plan. The school district is required to follow procedure as in giving tests for evaluation, noting all evidence presented, having certain time restriction of when things have to be done, honoring all items placed on the 504 plan etc. But so long as they follow 'Procedure', OCR will not interfere. The schools have no obligation to actually do anything as the OCR will not investigate individual complaints not related to 'procedural' issues. Your only recourse is to file a Due Process complaint with the school and though it clearly states a school cannot withhold accommodations for financial reasons it will be considered at any hearing whether spoken aloud or not.

The school most likely will institute things that will reduce their liability in case of accident like more time to get to class, use of the elevator, someone to walk you child from class to class, someone to carry their books, etc. They may institute some things that do not cost them in time or money like an extra set of books for home use, less homework, more time to finish assignments , etc

But try to get them to do something under a 504 that will cost them money or time and you will hit a brick wall. Although the accommodation is clearly one that is available according to the Parent & Educator Guide Appendix E and 504 plan & IDEA Q&A  and other places on this site and the web. The school will be reluctant to do anything for your child that will cost them time or money and as such getting your child qualified under an IEP and SPED will greatly increase your chances of getting results. It will also give you more options as to filing complaints. You can file within the school and get mediation, You can file through the States Board of Education ( here in Washington that would be the OSPI) and you can have an appeals hearing as well as file a civil suit.

WAC 392-172-106 General areas of evaluation. (1) The evaluation of a student shall be in all areas related to the suspected disability, including, if appropriate, health, vision, hearing, social and emotional status, general intelligence, academic performance, communicative status, and motor abilities.

(2) The evaluation shall be sufficiently comprehensive to identify all of the student’s special education and any necessary related services needs, whether or not commonly linked to the disability category in which the student has been classified.

Amber would be considered to have Health, Vision, Social, Emotional, Intelligence, Academic and Motor Ability deficits. What the IEP team would qualify her under would not matter. It would be the related services we would be seeking as the school has seen fit to disallow her NLD as cause for having verbal testing, books on tape or someone read to her and less test questions and homework all viable under the 504 but not provided by our school district.

WAC 392-172-108 Evaluation procedures.

(b) For a student suspected of having a learning disability, the determination of whether the student is eligible under this chapter shall be made by child’s parent(s) and a group of qualified professionals which must include:

(i) The student’s general education classroom teacher;

(iv) At least one individual qualified to conduct individual diagnostic examinations of children, such as school psychologist, speech language pathologist, or remedial reading teacher.

(5) No single procedure shall be the sole criterion for determining a student’s eligibility or disabling condition and/or for determining the appropriate educational program for a student.

No regular classroom teacher, of Amber, was present at the meeting.

The Vice Principals constant reiteration that passing the WASL was enough to disqualify Amber was in error according to (5)

 Amber was tested by Dr. Dorsch Ph.D Mary Bridge Children's Hospital. The testing was extensive :

Dr. Dorsch wrote an 14 page summary and recommendation report of her test results and included another 5 pages of the actual test results. All was dismissed by the school when we had our meeting. The 'feeling' I got at the meeting was that they either did not believe the test results or were of an opinion that they were not going to give them any weight in making any decisions. In fact the School Psychologist disparaged the test by stating " This seems very complete but the results would really depend on how the test was given". Basically calling into question the honesty and competence of Dr. Dorsch.

I do not know Dr. Dorsh's qualifications but I do know she has spent years dealing with children and testing them. She is a part of the faculty at Children's Hospital in Seattle and works out of an office at Mary Bridge in Tacoma. She seemed more than competent during our meetings and I seem to recall her having said she has been doing this type of work for 15 + years as she wished she had met Amber some 12 years ago so that she could have been involved in her needs. 

Below is a a list of WAC codes for certain eligibility requirements that I believe can be applied to Amber specifically. At the least a case can be made for each though some might be a stretch others are dead on.

WAC 392-172-118

WAC 392-172-122

WAC 392-172-124

WAC 392-172-126

WAC 392-172-128

WAC 392-172-134

WAC 392-172-136

WAC 392-172-142

WAC 392-172-148

 

The aforementioned chapters all deal with specific disabilities of which Amber has in total or in part an interest in. Any of these could be used to qualify her for SPED , but as I stated earlier the only reason we are seeking SPED is that the school will not provide accommodations under the 504 plan for what we feel are legitimate concerns due to her learning disabilities.

 

WAC 392-172-159 Development, review, and revision of individualized education program-consideration of special factors.

(3) If, in considering the special factors described above, the IEP team determines that a student needs a particular device or service (including an intervention, accommodation, or other program modification) in order for the student to receive a free appropriate public education, the IEP team must include a statement to that effect in the student's individualized education program.

For those of you that feel you have not been treated fairly by the schools you have several options the first being Mediation. 

WAC 392-172-312 Mediation

Currently only available to children who are in SPED and have an IEP. This is a non formal meeting of the parents, school and OSPI as well as any other interested parties to try to hash out a compromise. You as the parent have the right to stop the proceedings at any time and opt to go to legal processes or to not go any further. But this mediation is provided at no cost and so should be considered before you wind up spending a fortune on lawyers. Both the school and you have to agree to mediation and nothing is binding nor can the mediator do more than make suggestions. They have no power to force anyone to do anything. The mediator is supposed to be non-partial but as they work at the behest of OSPI I seriously doubt that you will encounter true impartiality. Still you may receive what you desire so use this option. It has no legal binding powers on you should you choose to seek other remedies. 

The next step if you so desire can be to register a complaint with OSPI (Office Superintendent Public Instruction) or your Dept of Education. Or if your child is under the 504 plan file a complaint with OCR for procedural violations or a Due Process hearing for individual remedies.

WAC 392-172-324 Definition—Complaint.

Be sure to include all necessary formal material as stipulated so that there will be no denial of your complaint on the grounds that you failed to comply with some technicality. You do not have to do any of these nor do them in order but it would be best if you did cause if you wind up in court you can document that you have tried going through the hoops that OSPI has laid out and have not found them adequate. It will go far in your credibility at court. You would be smart to have an attorney or really good advocate for the Complaint process.

Always, Always, Always do EVERYTHING  in WRITING!!!!!!

You need to have a paper trail so that you can document everything you have done. This will help you if you ever have to go as far as the courts to get what you want.

The next stop would be to appeal to a Court of Law.

WAC 392-172-360 Final decision—Appeal to court of law.

And if all else fails you have the right to bring a civil action under section 615 (e)(2) of the Individuals with Disabilities Education Act. A civil action may be filed in either state or federal court.

As stated earlier our intention is to get Amber accommodations under the 504 plan and we believe that everything we are asking for can be accommodated under the 504 plan, but the school district sees it differently. They have this idea that to give Amber certain accommodations she must qualify for SPED even though the accommodations have nothing to do with altering her class work to a degree to insure she is able to pass with a better grade. All we want is verbal testing and someone to read to her the chapters that are required of regular students. We would like to have her homework reduced and her test questions reduced so that she can complete them within a reasonable amount of time  We are not asking that her requirements be dumbed down so she gets an A instead of a B but only that if she can show her proficiency of regular class material in 20 questions instead of 50 that she be given 20. 

From all I have conferred with of this matter from Ambers psychologists to people working at OSPI to impartial advocates like those at WA-PAVE and even a call to the US dept of Education and the local Seattle offices of OCR (Office of Civil Rights). I have been told my desire for accommodation as I have stated is not unreasonable and should fall under the 504 plan. Why the school is being so adamant that Amber qualify for SPED.... Well the only reason I can think of is that they get more Federal funding the more SPED students they have. The problem is that although being under the 504 will have no bearing on Amber's chances for college entrance being under an IEP and SPED will. I have done my homework and will be fighting again to have Amber covered under the 504 even though I have initiated the IEP. As the parent I have the right to stop any process from proceeding if I feel it is no longer necessary. I have contacted the OCR (Office of Civil Rights) as they are responsible for administering the 504 plan, to find what other weapons I can place in my arsenal before my next meeting with the school. Apparently they are more interested in procedural violations and not individual needs . Though the person I talked with said he as well thought the matter was a 504 issue. The spokes person said if I feel that the school did not fairly and adequately consider all information provided in rendering their decision I could file a complaint with their office but if I just did not get what I was asking for I needed to file for Due Process or take another approach to remedy the situation.

In other words if I feel that the school did not adequately consider all information provided nor seek out information from those I listed in my letter or in some way did not conduct all the appropriate testing and gaining of information to make an informed decision, I could file a complaint with OCR, because these would be procedural issues.

I also called the offices for mediation for some advice as to how best to continue in my efforts to advocate for my daughter but was informed they only deal with the IEP and SPED as they are funded in part by the Feds for these mediations. My only alternative while Amber is qualified under a 504 is a Due Process hearing. One could always file a civil suit against the District if you have the money and time.

The current date is Sep. 24, 2008 and I would think the next meeting would be in 30 days or less.

An update:

I received a call from the Special Ed director at the district and she stated that she would call the school and see if they could do anything as far as accommodations that I am seeking. She also said she was in the process of reading DR. Dorsch's report I had attached to my letter and had gotten a call from Amber's psychologist and was going to try to return the call. Apparently she at least is doing something. Whether it will be enough time will tell. 

It is interesting that though I gave the Dr's report to the school psychologist at the previous meeting, he had not made copies and sent them to anyone. The reports that were distributed to those involved were ones I had made and hand delivered to about twelve individuals I thought needed the information. Do not rely on any party to do anything. Always find a way to do it yourself if possible cause one cannot rely on others to do what is needed.

Update : We had our second meeting and though the ass kissers were more cordial and more willing to agree of what we were saying they did not make any changes to the 504 other than to protect their collective asses in case of emergency. They were working on a way to evacuate my daughter from the school as she now uses an electric mobility chair to get around. You can read more of our fight as regards this matter in the Blog of Amber and Family

Suffice to say we have elected to get the IEP and SPED so that we will have more weight placed on what we want and more options to fight for what they are unwilling to give. As stated here and other pages of this site the 504 plan is by far the easiest to get but the hardest to enforce. It is a Federally mandated program with no teeth with which to really force the school to do anything. The IEP and SPED however is Federally funded and allows for considerably more ways to fight for your child.

If your child does not qualify for an IEP and SPED you have to fight under the 504. Use the Due Process hearing and if necessary file a civil action in Court. Do not let the school dictate to you of things you know are available accommodations under a 504. If you lose at the Due Process hearing you can always take them to court and let a judge or jury decide. This will of course cost you money so be prepared if you lose but should you win I would think your costs would be reimbursed by the school. Talk to a lawyer whether you intend to hire one or not to know just what to expect.

If your child will qualify under an IEP and SPED then you might want to consider this alternative to get what you want. The school will likely give more as the Feds are paying but even if they don't you have more options to fight the school before it costs you money for a civil suit.

I may be low income and a civil suit (if I lose) will likely put me on welfare and I'll lose my rentals but I am 50 years old and have lived over half my life. My daughter is just starting out with 60+ years ahead of her. I need to make sure she is prepared to face the future as best she can and if that means I take a hit in the short term to ensure her future, then so be it. 

Besides what am I really giving up? I mean we just paid the 2nd half property taxes, almost $6500.00, and we have a grand total of $2200.00 left to our name. After we pay to get Tami's car out of the shop and the insurance on a couple rentals due in December we might save enough for Aprils half property taxes. We live on a shoestring saving just enough to pay property taxes and insurance. We will never have anything for ourselves so the only loss we will face is losing our kids inheritance. It probably would be less stressful on us just to sell the rentals and go on welfare than to try and fight to keep our heads above water. I mean seriously. I can't work, hell I can barely walk. The wife wouldn't be able to hold a job what with having to care for Amber and Joey and me. We are borderline poverty as it is and I know renters of mine that are on welfare, section 8 housing and food stamps and paid utilities and they even get cash for other things as well as reduced phone costs and in total they make more than I do and I have to bust my ass to take care of the rentals, cleaning roofs, chimneys, gutters, repairing things and replacing things and re-renting when they move and dealing with their sob stories and well it would just be so much easier to take the handout than fight to survive. Yet we do, mostly cause I want my kids to inherit something that will give them a leg up to a better life and cause I know that in time they will have lives of their own and then what we have will be enough for the Wife and I, though as Amber deteriorates it does appear we might be taking care of her for the rest of our lives.

Sorry, I suppose this rant could have been better placed elsewhere but I was thinking it so just decided to say it.

 

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If you have a site that deals with any disabilities then consider either joining CPFSN.org  (it is totally free) and having a link to your site on the appropriate page (e.g. State, County) as well as the ‘Members’ page or doing a simple link exchange and having your site appear on the ‘CP Family’ links page, if you or your child has CP or any disability.

 

If you do not have CP or a child with CP or have a site devoted to any disability you can still have a reciprocating link placed on the Non-CP related links page. A link exchange would not only show your support of this site but would increase your ranking with search through having another outside link (SEO).

 

Use the ‘Contact Us’ page and email Robert if you are interested in any link exchange or joining CPFSN.org. Send the information of the site you want us to link to and the code you would like entered. I cannot guarantee that all requests will be honored but I will take a personal look and make a fair and unbiased decision.

 

 

 

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