I personally have spent literally weeks in search of information, having to scour so many different sites to find a piece here and a piece there it would benefit us all if we could have links placed here that would point to sites that would have all the information in one place for the County or City that a disabled person lived in. Information that was relevant for people with cerebral palsy or other disabilities right down to the IEP and 504 plan for schools the contacts the people that handled the services, phone numbers and the like. Why should we have to struggle to find what we need. Either join our network and have a link to your site for your community or send me the information and I will place it here under the appropriate State, County, City and School if need be.

Alphabetical listing of most pages on this site: Exceptions will be state and county pages. Some are not linked from this sidebar but from within a page

The CP Links Page is where you will find most Federal, State and local County pages.

THE HOMEPAGE

WHAT IS CP
CEREBRAL PALSY
My attempt to clarify CP you may find the information provided by NINDS is more specific and detailed

TREATMENT of CP
There are many different treatments and I only name those I am familiar with

Physical Therapy
How it is essential to maintain range of motion

Occupational Therapy
How it is essential to maintain quality of life

Speech Therapy
What I know through my experience By far not even close to what you should know

Medication and Orthotics
Again what I know through experience Much more can be had searching the net or talking with doctors and therapists

CP LINKS
To Federal, State, County, City / Town and School District WebPages. Health links and hopefully links to local disability sites and activity and events calendars just drill down to the page you want

Cerebral Palsy Glossary
Terms used when referring to items related to CP . Many of us may see these on a doctors report and not know what it really means.

More Information of CP provided by NINDS
Perhaps a bit more concise and informed than my attempt to tell of what CP is.
What Causes Cerebral Palsy?
What are the Risk Factors?
Can Cerebral Palsy Be Prevented?
What Are the Different Forms?
What Other Conditions Are Associated With Cerebral Palsy?
How Does a Doctor Diagnose Cerebral Palsy?
How is Cerebral Palsy Managed?
What Specific Treatments Are Available?
Drug Treatments
Surgery
Orthotic Devices
Assistive Technology
Alternative Therapies
Are There Treatments for Other Conditions Associated with Cerebral Palsy?
Do Adults with Cerebral Palsy Face Special Health Challenges?
What Research Is Being Done?
Where can I get more information?

Specific Neurological Disorders
Many of these do not fall under the heading of CP but are disabilities nonetheless.

My take on the IEP, IDEA 2004 (Public Law 94-142 & Public Law 101-476), and the 504 plan.
In 1990, changes to Public Law 94-142 arrived through the Education of the Handicapped Act Amendments of 1990 (Public Law 101-476). Most apparent was the law’s name change – instead of the Education of the Handicapped Act, it is now called the Individuals with Disabilities Education Act. IDEA 2004

IEP overview
A Guide to the Individualized Education Program with sections highlighted and comments by me

504 plan & IDEA Q&A
Protecting Students and others with Disabilities also a list of accommodations and modifications as would relate to the school environment. More on accommodations in the Parent and Educator Guide Appendix E

Parent & Educator Guide of 504 Plan concepts and real life accommodations. Drafted by the OSPI and 5 Puget Sound area School Districts but would be a valuable asset to any fighting for their child's 504 accommodations anywhere U.S.A.

IDEA 2004 summary&
Title 1 IDEA as written (Public Law 94-142 & Public Law 101-476)
A lot of legalese and unless you are a lawyer or are looking for specific law probably will not be of much benefit. You will better spend your time reading the Parent and Educator Guide, the IEP overview and the 504 plan & IDEA Q&A

Washington State Chapter 392-172 WAC SPED special education and the IEP
This is Washington State law as regards the IEP and special education
Also a bit about our (current Nov 08) personal battle for Amber

FORUMS (BBS)
Registration is required but please use the forums to ask and receive answers as well as post your needs or what help you can provide

LIVE CHAT

MEMBER PAGES
Those who have joined with me to try to educate everyone of the trials of having a child with CP or other disability and where to find information

Pierce County Events
Local events for the disabled If you know of any let me know I'll post them here

DONATIONS/GIFTS

AMBER'S STORY
Amber's story from birth to I started this website. Her continuing story is in the Blog

AMBER'S PARENTS
A bit about us and maybe you will get to know why we did what we did and continue to do what we do by knowing a bit about us.

Blog of Amber and Family
The continuing story of Amber and family updated as I have time.

SHARE YOUR STORY
This is different from the Forums as the Forums are where you would post questions and answers.
In the share your story section people like you will post their unique experiences and through what is said you may find you are not alone. You may also find a friend and someone you can relate to. And possibly a way to realize your own goals.

CP FAMILY LINKS
Websites created by people who have CP or someone in their family has CP. Net-etiquette applies. All sites are subject to approval. Banners and text allowed on these links.

NON CP RELATED
OTHER LINKS PAGES
Posted 1st come 1st served. We hope to have many of our friends and supporters post their pages here. Net-etiquette applies.
All sites are subject to approval. All Non-CP links are text only with a line or two of information of the link posted.
Please notify me of any broken links so I can remove or fix them.

JOIN OUR NETWORK
Join with me in trying to educate the public of CP and other disabilities

WHY THIS SITE?
What motivated me to build this site

Robert wrote a Science Fiction trilogy while being laid up. It took 4 years to complete and he has for sale Book 1 of the trilogy HERE

He is awaiting editing and copyrights on books 2 & 3 before sending them to the publisher. Book 1 can stand alone and is a complete novel of 237 pages and 135,000+ words in PDF format.

Making Money Online (or not)
What I've tried and what I believe. The things to watch out for. Many with disabilities have a very difficult time working a 9 to 5 so working online is a viable alternative. However be wary of those who will take your money and not deliver any worthwhile information.

Other sites I have or to be more precise the wife has and I take care of.

www.tamicraft.com

www.vintageslips4u.com

JOIN the Cerebral Palsy Family Support NETWORK

Join our network of disabled sites by just simply prominently displaying a link to this site on a main page of your site or a prominent on going mention in your disabled blog.

Whatever you decide it is all about getting the information of Cerebral Palsy support and advocacy groups and governmental agency information into the hands of those disabled who are in need. The schools 504 plan and the IEP ( individualized education program) information is also a must for parents with children who have Cerebral Palsy or other disabilities. We must strive to get this information together so we can disseminate it to those in need. By prominently linking to each other we provide a vast database resource for those in need, to search and find answers.

I personally have spent literally months and yes probably over the years even more time than I can remember, in search of information, having to scour so many different sites to find a piece here and a piece there it would benefit us all if we could have links placed here that would point to sites that would have all the information in one place for the County or City that a disabled person lived in. Information that was relevant right down to the IEP and 504 plan for schools the contacts the people that handled the services, phone numbers and the like. Why should we have to struggle to find what we need. Either join our network and have a link to your site for your community or send me the information and I will place it here under the appropriate State, County, City and School if need be.

If you do not have a web site there is free blog space and web space available and if you want more control there are some very inexpensive choices for web hosting as well.

Not knowing what I was doing, I went for the premium package a few years back and have found that I could have done just as much with the cheap hosting package, but live and learn.

The small package is all you will ever need and if you do find you want more you can always upgrade. I know IX offers a Windows based hosting plan but know nothing about it. I know I have Windows XP on my PC and I use MS FrontPage as my HTML editor. I know you enable Front Page extensions in the Linux based plan and you upload through the FrontPage publish wizard. I've had no problems doing this and do not know what the Windows plan offers over the Linux plan. I just know it costs more. At any rate the cheap Linux plan is sufficient and you would be able to have 2 Domains with more space than you will most likely ever use. There should be a banner link on the sidebar to the cheap plan and a link at the bottom of every page.

If you want to know more of what they offer than what you read at their site just contact me. I have been with them for 2 years and though I'm not a computer geek I do know a bit of what I am using.

CEREBRAL PALSY FAMILY SUPPORT NETWORK

The reason for the word NETWORK in the name is that I hope to be able to offer services to others who want to help Children with Cerebral Palsy. Any who want to start a Chapter of

CEREBRAL PALSY FAMILY SUPPORT NETWORK

Will be able to do so for a simple prominent link back to us. We would provide some limited other support like maybe helping you put together a website or setting up your Forums and Chat. But the real benefit would be in being part of a network where we can exchange information and help each other as it concerns Cerebral Palsy and other childhood disabilities.

We would require The words

( Cerebral Palsy Family Support Network ) and our logo be prominently displayed on at least one of the main pages of your site. With a link back to our home page. This would be about the only requirement. That and of course the site deal with Cerebral Palsy or other disabilities providing services to people with disabilities in your community even if it is only information and/or a chat room and/or Bulletin Board / Forums or blog This is not to say the entire site need be about CP. Though the homepage and I would think the majority of the site should be devoted to the disabled. If you are into quilting or bike riding or video games or whatever you could devote part of your site to such things within net-etiquette guidelines and not having to do with items such as pornography, racism, hate groups or other morally offensive things. I would monitor the site and reserve the right to pull our name and support if you were found in conflict

We would require that each entity get their own non-profit status, if they choose to go that route but if not they must clearly identify they do not have non-profit status also that though they are part of the 'network' they are individually or independently owned and operated and that we here at CPFSN have no liability for anything done by you or said on your site. This disclaimer must be placed on each page of the site that in anyway mentions or refers to CPFSN.

I haven't worked out the details yet but I'm thinking about it

Your second Domain could be used for whatever you want it is yours after all and has no connection with CPFSN.

Start your own online business or make it a personal page about your hobbies or whatever.

But I want to grow this movement so that people with CP and especially those having children with CP or other disabilities have a way to find answers and talk with others in their local community and within their State and on a National and International level as well.

If you are interested contact me, Robert, information on the contact us page.

You can make some money off the ads you place on your site. It isn't much, depending on how many use them, but it should pay for your hosting.

Keep in mind however that should you get your own web hosting you get substantial sub-domains to build a network of sites to increase your footprint on the web and possibly make some money for yourself or to help those in need. My goal is to get to the point where I am financially secure then do what I can to help those in my community. That is the reason I do not have non-profit status right now. Currently I'm lucky if I make $20.00 a month off the websites ads and sales pages combined. It pays for the expenses but little is left. I need to provide for my family first then I can help others financially. But in providing this and other webs I am helping with information. If you do not want to join CPFSN then please send me that relevant information so I can place it in the State, County, City, School that it belongs. Working on this by myself it will take 50 years. Your help would be appreciated.

For those of you that have web sites you know that SEO (Search Engine Optimization) and PR (Page Rank) is based on a lot of things and one of them is having links to sites that have similar content. By us working together and posting each others links we would be increasing traffic to our sites and increasing our PR.

Make a secure donation/gift through Paypal by clicking on the link below:

Or you can make a donation manually by following one of the steps below.

Donations/Gifts are graciously accepted, Just log on to www.Paypal.com , Click "Send Money" tab and follow the instructions to send money from an existing Paypal account or by any major Credit Card. Use the email address below to make a Donations/Gifts on Paypal.

If you do not see an email address it is because you need to enable javascripts. The email is in javascript to foil the spambots.

You can also mail a Donation/Gift to

Tami Taormina

P.O. Box 4463

Spanaway, WA. 98387

ALL these pages are open to the public. As such you agree that you are at least 18 years of age when submitting any posts. That you agree and consent that any pictures you send are open source and that You will not hold me or or any person or entity involved with this site liable for any damages whatsoever. That any contact you make with others through this site are solely your responsibility and you in no way will hold this site or me or any person or entity liable in any way for any damages that might occur by your use of this site and the various posts, chat and forums available. If you do not agree to any of these terms then do not use this site.

I cannot force any to use the forums but I would encourage you to do so if you have questions you would like answers to or have a statement you would like to make. I know that having to register and using the anti-spambot code makes you have to do one more step than most, but it also insures that the forums are not bombarded by spambots posting crap on the site. I try to check the forums at least weekly (often daily) and I have to say that so far I am disappointed that none have chosen to take advantage of this free opportunity to get and give information. I built this site to help the disabled get information and the use of the forums and sharing your stories is a huge part of that endeavor. Please help one another and I will try to answer what I can as well. We are a community of the disabled or parents of disabled children and we should do whatever we can to help each other gain the upper hand or help each other cope with difficult situations. Just go to the forums page and write down the answer to the anti-spambot question and enter it on the registration page. You only need do this once to have full access to the forums.

If you have a site that deals with any disabilities then consider either joining CPFSN.org (it is totally free) and having a link to your site on the appropriate page (e.g. State, County) as well as the ‘Members’ page or doing a simple link exchange and having your site appear on the ‘CP Family’ links page, if you or your child has CP or any disability.

If you do not have CP or a child with CP or have a site devoted to any disability you can still have a reciprocating link placed on the Non-CP related links page. A link exchange would not only show your support of this site but would increase your ranking with search through having another outside link (SEO).

Use the ‘Contact Us’ page and email Robert if you are interested in any link exchange or joining CPFSN.org. Send the information of the site you want us to link to and the code you would like entered. I cannot guarantee that all requests will be honored but I will take a personal look and make a fair and unbiased decision.

All email addresses are in javascript you need to have scripts enabled to see them.

This ad will take you to a page where you can view many web hosting products and receive full information of each. If you do not see the ad you can click here This link will take you to the homepage of ixwebhosting. Yes, I use ixwebhosting.

Cerebral Palsy Family Support Network TM
Dedicated to helping families find the support services they need.

Cerebral Palsy Family Support TM

JOIN the Cerebral Palsy Family Support NETWORK

Cerebral Palsy Family Support Network TM Dedicated to helping families find the support services they need.

Cerebral Palsy Family Support TM

JOIN the Cerebral Palsy Family Support NETWORK

Cerebral Palsy Family Support Network TM
Dedicated to helping families find the support services they need.