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United Cerebral Palsy of South Puget Sound UCP has local chapters throughout the
entire country. I have never used them except as a reference to other
resources.
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Pierce County Coalition for Developmental
Disabilities (PC2) Use the
Resource Guide to find most every link available in Washington State and
especially Pierce County for all types of disabilities. If you
find this site useful please let them know you would like to see it listed
as well. perhaps even an active link on their resource links page.
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(DO-IT) Disabilities Opportunities
Internetworking Technology
doit@u.washington.edu
Director Dr. Sheryl Burstahler 888 972 3648 (free)
I personally called these people and found them of little help with my
particular situation which had to do with school related issues. You may
find them more useful than I. They are based at the University of Washington
in Seattle.
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Parents are Vital in Education (PAVE)
wapave9@washingtonpave.com
| 6316 So. 12th St. | Tacoma, WA 98465
(253) 565-2266 (v/tty) | 1-800-5-PARENT (v/tty) | Fax: (253) 566-8052
This is a State wide organization whose home office is in Tacoma, WA. They
advocate and have information on many types of disabilities. I have
personally called these people on a couple of different issues over the years
and found them informative but unable to help
with the situations I had called them about or in one case somewhat abrasive
and adversarial. I found Debbie at their Spokane office much easier to talk with
that those here in Pierce county. Perhaps you will get better
results. Their website has a lot of links to other resources. ( I
personally found I was just as knowledgeable as those I talked with and any
information they provided I already had on this site. I would personally not
use them for advocacy help as I do not think they would benefit me. However
unless you are as knowledgeable as I, you might find them useful.)
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Community inclusion Program
Pierce County This program is under WA-PAVE and is a place for the
disabled and non-disabled to get together and mingle. My daughter is a part
of this program and enjoys going to the meetings which are mostly held in
Gig Harbor but they do have some in Tacoma and Puyallup. Do not assume that
any whom you meet at any meeting whether it be through the Inclusion Program
or any other group has your child's best interests at heart. Best to
exercise some parental control and get to know the people with whom you
entrust your child. My daughter was very interested in making friends and
wanted to have sleepovers at others homes. We did not do our due diligence
and as such exposed our daughter to a dangerous situation. She was able to
handle it and when she was able to get to a phone, call for our immediate
pickup. She was not physically harmed but emotionally she was a wreck.
Lesson learned. She still attends the meetings but no longer has sleepovers
with any she meets unless we have spent some time with the parents outside
of the meetings.
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Pierce County Parent To
Parent Called these people and was told they dealt mostly with the Asian
community or others who were not English speakers. They did however provide
some good information I was able to use.
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PCP Program of Pierce
County
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EFMP program for Fort
Lewis Military
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Brain Injury Association of Washington
3516 S. 47th Street, Suite 100
Tacoma, WA 98409
Tel 253.238.6085
Fax 253.238.1042
Helpline 1.800.523.5438 Not exactly CP, but related, Statewide but Home
office here in Pierce County
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Parents Support Group
Help Resources For Pierce County
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Childfind
Educational Service
Center
516 176th Street East
Spanaway, WA 98387-8399 Phone: 253-683-6927
Actually a program that can be accessed from most school districts, my
children are in the Bethel School District so this is the contact I list.
Under the Bethel School District contact Mark Wenzel, at:
mwenzel@bethelsd.org for more info
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Tacoma Area Coalition of Individuals with Disabilities TACID
Difficult to find anything on the website but has listings of local job
training and placement services and other things. You can get some
information from them over the phone but they would not be my first choice
if I was in need of help.
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The 504 Plan special
services for the disabled. A MUST if you have a disabled child in school. My
daughter is on this. See the left nav-bar for a link to more information.
Just type 504 plan into your search engine and you will have more links than
you will ever be able to read.
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IEP Individual
Education Plan A MUST for special education. Again look at the left nav-bar
for a link to more information.
Just type IEP into your search engine and you will have more links
than you will ever be able to read.
I hope you find the
information on these pages useful.
I would like to thank
those who came out and supported the Good Samaritan Hospital Therapy Unit's
Runway Pageant. The monies raised
are to be used to purchase items for the therapy unit. We appreciate your
support. Amber was honored to be one of 3 MC's to announce the children this
year. She is looking forward to doing it again next year. As soon as I get date
and time information on next years Fundraiser I will post it here.
For those
interested. In past years this was usually a fashion show with the
children being the models. The clothing was provided by local merchants.
Last year the format was changed to a talent show for those children with
disabilities. Depending of the severity of the disability the talents
ranged from just being able to smile to singing a song to dancing, one even was a stand up comic.
Many of the children
froze on stage which was to be expected but others did quite well and we are
proud of all that participated and of those who volunteered their time and
effort. We especially take note and give thanks the the Therapists who donated
their time and effort to help these children take the stage.
If you have never
attended such an event before I would suggest you bring plenty of tissues as the
courage of these children will make your heart swell and your eyes run rivers.
Amber has joined PAVE's
Community Inclusion Program and hopes to be able to make some new friends while
helping others with Disabilities. Her occupational therapists daughter is
somehow connected with this program. Also her psychologist has suggested
she be more involved with volunteer activities and so she has volunteered at the
YMCA on South Hill in Puyallup and is also looking to volunteer at a preschool/daycare
and a hospital as a candy striper. We will have to see what she can accomplish,
what with her disabilities.
As for my efforts, One person cannot
be expected to provide coverage of the entire country.
I hope to have County
School district websites listed here and any County specific
events and activity centers as well as up-coming events people
send me.
If you find any broken
links or out of date stuff please send me an email. Broken links
and out of date material do no one any good.
If you have any links
you want to add send me the link.
FYI
. The
Pierce County Health Department has contracted with the United Way to handle all
their community health referrals. More taxes for us, less work for Pierce
County and a coo for United Way. Kudos on landing the contract. Hope we
can afford it.
If you have a web
presence we would very much appreciate if you could place a link to our site on
yours. Here is the preferred link:
Cerebral Palsy Family Support Network
Dedicated to helping families find the support, resources and services they need.
And here
is the code for the above link. Just copy and paste it to a simple text editor
like notepad to take out any garbage FrontPage put in the code and then paste it
to your html.
<a href="http://www.cpfsn.org"><img border="0" src="http://www.cpfsn.org/images/buttonsbglogosetc/cpfslogo.gif" width="159" height="151" alt="The Cerebral Palsy Family Support Network dedicated to helping support families with a Disabled Child and or disabilities. Helping the disabled find resources and providing a place for the disabled or their parents to congregate and have their questions answered."></a><BR><b><font face="Arial,Helvetica" color="#000000" size="4"><a href="http://www.cpfsn.org">Cerebral Palsy Family Support Network</a></font></b><BR><b><font face="Arial,Helvetica" color="#FF0000" size="2"> Dedicated to helping families find the support, resources and services they need.</font></b>
You may place a simple text
link if you wish.
Make a secure donation/gift through Paypal by clicking on the
link below:
Or you can make a donation manually by following one of the steps below.
Donations/Gifts are graciously
accepted, Just log on to www.Paypal.com ,
Click "Send Money" tab and follow the instructions to send money from
an existing Paypal account or by any major Credit Card. Use the email address
below to make a Donations/Gifts on Paypal.
If you do not see an email address it
is because you need to enable javascripts. The email is in javascript to foil
the spambots.
You can also mail a Donation/Gift to
Tami Taormina
P.O. Box 4463
Spanaway, WA. 98387
ALL these pages are open to the public. As such you agree that you are at least
18 years of age when submitting any posts. That you agree and consent that any
pictures you send are open source and that You will not hold me or this site
liable for any damages whatsoever. That any contact you make with others through
this site are solely your responsibility and you in no way will hold this site
or me or any person or entity liable in any way for any damages that might occur
by your use of this site and the various posts, chat and forums available. If
you do not agree to any of these terms then do not use this site.
I cannot force
any to use the forums but I would encourage you to do so if you have
questions you would like answers to or have a statement you would like to
make. I know that having to register and using the anti-spambot code makes
you have to do one more step than most, but it also insures that the
forums are not bombarded by spambots posting crap on the site. I try to
check the forums at least weekly (often daily) and I have to say that so
far I am disappointed that none have chosen to take advantage of this free
opportunity to get and give information. I built this site to help the
disabled get information and the use of the forums and sharing your
stories is a huge part of that endeavor. Please help one another and I
will try to answer what I can as well. We are a community of the disabled
or parents of disabled children and we should do whatever we can to help
each other gain the upper hand or help each other cope with difficult
situations. Just go to the forums page and write down the answer to the
anti-spambot question and enter it on the registration page. You only need
do this once to have full access to the forums.
If you have a
site that deals with any disabilities then consider either joining
CPFSN.org (it is totally
free) and having a link to your site on the appropriate page (e.g. State,
County) as well as the ‘Members’ page or doing a simple link exchange
and having your site appear on the ‘CP Family’ links page, if you or
your child has CP or any disability.
If you do not
have CP or a child with CP or have a site devoted to any disability you
can still have a reciprocating link placed on the Non-CP related links
page. A link exchange would not only show your support of this site but
would increase your ranking with search through having another outside
link (SEO).
Use the ‘Contact Us’ page and email Robert if you
are interested in any link exchange or joining CPFSN.org. Send the
information of the site you want us to link to and the code you would like
entered. I cannot guarantee that all requests will be honored but I will
take a personal look and make a fair and unbiased decision.
2007
-2008