Cerebral Palsy Family Support Network TM
Dedicated to helping families find the support services they need.

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Cerebral Palsy Family Support TM  

Links to Specific Neurological Disorders 

The following are links to neurological disorders listed on the 'NINDS' website. The information you will likely find by using these links is: 

What is ? whatever the disease or disorder is.
Is there any treatment?
What is the prognosis?
and possibly 
What research is being done?

You may find more information such as:

Organizations directly involved with the disorder.
Related NINDS Publications and Information and/or
Additional resources from MEDLINEplus 

The list is far from complete and the information is general at best but from here you might find links to more specific information or you may return to look at other links we have for you. I am trying to get as much information as I can into your hands so you can make informed decisions as to your child's welfare. The Federal, State and County links under CP LINKS may prove more useful. I have added a few links, like NLD, as I thought them of great importance.

I would suggest you read the page on this site called " More Information of CP provided by NINDS As it delves deeper into Cerebral Palsy and its causes and treatments. If you have questions post them in the forums.

Why am I posting these links that will lead you away from my site? Like I said on the homepage, it is not about me, it is about you being able to find the information that you need. I post these links so that you can find that information and give thanks to NINDS for allowing me to do so. I hope you find the answers you are seeking.


SITEMAP 

Alphabetical listing of most pages on this site: Exceptions will be state and county pages. Some are not linked from this sidebar but from within a page

The CP Links Page is where you will find most Federal, State and local County pages.

THE HOMEPAGE

WHAT IS CP
CEREBRAL PALSY

My attempt to clarify CP you may find the information provided by NINDS is more specific and detailed

TREATMENT of  CP
There are many different treatments and I only name those I am familiar with

Physical Therapy
How it is essential to maintain range of motion

Occupational Therapy
How it is essential to maintain quality of life

Speech Therapy
What I know through my experience By far not even close to what you should know

Medication and Orthotics
Again what I know through experience Much more can be had searching the net or talking with doctors and therapists

CP LINKS
To Federal, State, County, City / Town and School District WebPages. Health links and hopefully links to local disability sites and activity and events calendars just drill down to the page you want

Cerebral Palsy Glossary
Terms used when referring to items related to CP . Many of us may see these on a doctors report and not know what it really means.

More Information of CP provided by NINDS
Perhaps a bit more concise and informed than my attempt to tell of what CP is. 
What Causes Cerebral Palsy?
What are the Risk Factors?
Can Cerebral Palsy Be Prevented?
What Are the Different Forms?
What Other Conditions Are Associated With Cerebral Palsy?
How Does a Doctor Diagnose Cerebral Palsy?
How is Cerebral Palsy Managed?
What Specific Treatments Are Available?
Drug Treatments
Surgery
Orthotic Devices
Assistive Technology
Alternative Therapies
Are There Treatments for Other Conditions Associated with Cerebral Palsy?
Do Adults with Cerebral Palsy Face Special Health Challenges?
What Research Is Being Done?
Where can I get more information?

Specific Neurological Disorders
Many of these do not fall under the heading of CP but are disabilities nonetheless.

My take on the IEP, IDEA 2004 (Public Law 94-142 & Public Law 101-476), and the 504 plan.
In 1990, changes to Public Law 94-142 arrived through the Education of the Handicapped Act Amendments of 1990 (Public Law 101-476). Most apparent was the law’s name change – instead of the Education of the Handicapped Act, it is now called the Individuals with Disabilities Education Act. IDEA 2004

IEP overview
A Guide to the Individualized Education Program with sections highlighted and comments by me

504 plan & IDEA Q&A
Protecting Students and others with Disabilities also a list of accommodations and modifications as would relate to the school environment.  More on accommodations in the Parent and Educator Guide Appendix E

Parent & Educator Guide of 504 Plan concepts and real life accommodations. Drafted by the OSPI and 5 Puget Sound area School Districts but would be a valuable asset to any fighting for their child's 504 accommodations anywhere U.S.A. 

IDEA 2004 summary&
Title 1 IDEA as written (Public Law 94-142 &
Public Law 101-476) 
A lot of legalese and unless you are a lawyer or are looking for specific law probably will not be of much benefit. You will better spend your time reading the Parent and Educator Guide, the IEP overview and the 504 plan & IDEA Q&A

Washington State Chapter 392-172 WAC SPED special education and the IEP
This is Washington State law as regards the IEP and special education
Also a bit about our (current Nov 08) personal battle for Amber

FORUMS (BBS)
Registration is required but please use the forums to ask and receive answers as well as post your needs or what help you can provide

LIVE CHAT

MEMBER PAGES
Those who have joined with me to try to educate everyone of the trials of having a child with CP or other disability and where to find information

Pierce County Events
Local events for the disabled If you know of any let me know I'll post them here

CONTACT US

DONATIONS/GIFTS

AMBER'S STORY
Amber's story from birth to I started this website. Her continuing story is in the Blog

AMBER'S PARENTS
A bit about us and maybe you will get to know why we did what we did and continue to do what we do by knowing a bit about us.

Blog of Amber and Family
The continuing story of Amber and family updated as I have time.

SHARE YOUR STORY
This is different from the Forums as the Forums are where you would post questions and answers.
In the share your story section people like you will post their unique experiences and through what is said you may find you are not alone. You may also find a friend and someone you can relate to. And possibly a way to realize your own goals.

CP FAMILY LINKS
Websites created by people who have CP or someone in their family has CP. Net-etiquette applies. All sites are subject to approval. Banners and text allowed on these links.

NON CP RELATED
OTHER LINKS PAGES
Posted 1st come 1st served. We hope to have many of our friends  and supporters post their pages here. Net-etiquette applies. 
All sites are subject to approval. All Non-CP links are text only with a line or two of information of the link posted.
Please notify me of any broken links so I can remove or fix them. 

JOIN OUR NETWORK
Join with me in trying to educate the public of CP and other disabilities

WHY THIS SITE?
What motivated me to build this site

  CONTACT US
Direct your comments to Robert.

Robert wrote a Science Fiction trilogy while being laid up. It took 4 years to complete and he has for sale Book 1 of the trilogy HERE

He is awaiting editing and copyrights on books 2 & 3 before sending them to the publisher. Book 1 can stand alone and is a complete novel of 237 pages and 135,000+ words in PDF format.

Making Money Online (or not) 
What I've tried and what I believe. The things to watch out for.  Many with disabilities have a very difficult time working a 9 to 5 so working online is a viable alternative. However be wary of those who will take your money and not deliver any worthwhile information.

Other sites I have or to be more precise the wife has and I take care of.

www.tamicraft.com 

www.vintageslips4u.com

 

A 

Absence of the Septum Pellucidum
Acid Lipase Disease
Acid Maltase Deficiency
Acquired Epileptiform Aphasia
Acute Disseminated Encephalomyelitis
 
ADHD
Adie's Pupil
Adie's Syndrome
Adrenoleukodystrophy
Agenesis of the Corpus Callosum
 
Agnosia
Aicardi Syndrome
AIDS - Neurological Complications
Alexander Disease
Alpers' Disease
 
Alternating Hemiplegia
Alzheimer's Disease
Amyotrophic Lateral Sclerosis
Anencephaly
Aneurysm
 
Angelman Syndrome
Angiomatosis
Anoxia
Antiphospholipid Syndrome
Aphasia
 
Apraxia
Arachnoid Cysts
Arachnoiditis
Arnold-Chiari Malformation
Arteriovenous Malformation
 
Asperger Syndrome
Ataxia
Ataxia Telangiectasia
Ataxias and Cerebellar or Spinocerebellar Degeneration
Atrial Fibrillation and Stroke
 
Attention Deficit-Hyperactivity Disorder
Autism
Autonomic Dysfunction
 
 
 

B 

Back Pain
Barth Syndrome
Batten Disease
Becker's Myotonia
Behcet's Disease
 
Bell's Palsy
Benign Essential Blepharospasm
Benign Focal Amyotrophy
Benign Intracranial Hypertension
Bernhardt-Roth Syndrome
 
Binswanger's Disease
Blepharospasm
Bloch-Sulzberger Syndrome
Brachial Plexus Birth Injuries
Brachial Plexus Injuries
 
Bradbury-Eggleston Syndrome
Brain and Spinal Tumors
Brain Aneurysm
Brain Injury
Brown-Sequard Syndrome
 
Bulbospinal Muscular Atrophy
 
 
 

C 

CADASIL
Canavan Disease
Carpal Tunnel Syndrome
Causalgia
Cavernomas
 
Cavernous Angioma
Cavernous Malformation
Central Cervical Cord Syndrome
Central Cord Syndrome
Central Pain Syndrome
 
Central Pontine Myelinolysis
Cephalic Disorders
Ceramidase Deficiency
Cerebellar Degeneration
Cerebellar Hypoplasia
 
Cerebral Aneurysm
Cerebral Arteriosclerosis
Cerebral Atrophy
Cerebral Beriberi
Cerebral Cavernous Malformation
 
Cerebral Gigantism
Cerebral Hypoxia
Cerebral Palsy
Cerebro-Oculo-Facio-Skeletal Syndrome
Charcot-Marie-Tooth Disease
 
Chiari Malformation
Cholesterol Ester Storage Disease
Chorea
Choreoacanthocytosis
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
 
Chronic Orthostatic Intolerance
Chronic Pain
Cockayne Syndrome Type II
Coffin Lowry Syndrome
COFS
 
Colpocephaly
Coma and Persistent Vegetative State
Complex Regional Pain Syndrome
Congenital Facial Diplegia
Congenital Myasthenia
 
Congenital Myopathy
Congenital Vascular Cavernous Malformations
Corticobasal Degeneration
Cranial Arteritis
Craniosynostosis
 
Creutzfeldt-Jakob Disease
Cumulative Trauma Disorders
Cushing's Syndrome
Cytomegalic Inclusion Body Disease
Cytomegalovirus Infection
 
 
 

D 

Dancing Eyes-Dancing Feet Syndrome
Dandy-Walker Syndrome
Dawson Disease
De Morsier's Syndrome
Deep Brain Stimulation for Parkinson's Disease
 
Dejerine-Klumpke Palsy
Dementia
Dementia - Multi-Infarct
Dementia - Semantic
Dementia - Subcortical
 
Dementia With Lewy Bodies
Dentate Cerebellar Ataxia
Dentatorubral Atrophy
Dermatomyositis
Developmental Dyspraxia
 
Devic's Syndrome
Diabetic Neuropathy
Diffuse Sclerosis
Dravet Syndrome
Dysautonomia
 
Dysgraphia
Dyslexia
Dysphagia
Dyspraxia
Dyssynergia Cerebellaris Myoclonica
 
Dyssynergia Cerebellaris Progressiva
Dystonias
 
 
 

E 

Early Infantile Epileptic Encephalopathy
Empty Sella Syndrome
Encephalitis
Encephalitis Lethargica
Encephaloceles
 
Encephalopathy
Encephalotrigeminal Angiomatosis
Epilepsy
Erb-Duchenne and Dejerine-Klumpke Palsies
Erb's Palsy
 
Essential Tremor
Extrapontine Myelinolysis
 
 
 

F 

Fabry Disease
Fahr's Syndrome
Fainting
Familial Dysautonomia
Familial Hemangioma
 
Familial Idiopathic Basal Ganglia Calcification
Familial Periodic Paralyses
Familial Spastic Paralysis
Farber's Disease
Febrile Seizures
 
Fibromuscular Dysplasia
Fisher Syndrome
Floppy Infant Syndrome
Foot Drop
Friedreich's Ataxia
 
Frontotemporal Dementia
 
 
 

G 

Gangliosidoses
Gaucher's Disease
Gerstmann's Syndrome
Gerstmann-Straussler-Scheinker Disease
Giant Cell Arteritis
 
Giant Cell Inclusion Disease
Globoid Cell Leukodystrophy
Glossopharyngeal Neuralgia
Glycogen Storage Disease
Guillain-Barre Syndrome
 
 
 

H 

Hallervorden-Spatz Disease
Head Injury
Headache
Hemicrania Continua
Hemifacial Spasm
 
Hemiplegia Alterans
Hereditary Neuropathies
Hereditary Spastic Paraplegia
Heredopathia Atactica Polyneuritiformis
Herpes Zoster
 
Herpes Zoster Oticus
Hirayama Syndrome
Holmes-Adie syndrome
Holoprosencephaly
HTLV-1 Associated Myelopathy
 
Hughes Syndrome
Huntington's Disease
Hydranencephaly
Hydrocephalus
Hydrocephalus - Normal Pressure
 
Hydromyelia
Hypercortisolism
Hypersomnia
Hypertonia
Hypotonia
 
Hypoxia
 
 
 

I 

Immune-Mediated Encephalomyelitis
Inclusion Body Myositis
Incontinentia Pigmenti
Infantile Hypotonia
Infantile Neuroaxonal Dystrophy
 
Infantile Phytanic Acid Storage Disease
Infantile Refsum Disease
Infantile Spasms
Inflammatory Myopathies
Iniencephaly
 
Intestinal Lipodystrophy
Intracranial Cysts
Intracranial Hypertension
Isaac's Syndrome
 
 
 

J 

Joubert Syndrome
 
 
 

K 

Kearns-Sayre Syndrome
Kennedy's Disease
Kinsbourne syndrome
Kleine-Levin Syndrome
Klippel-Feil Syndrome
 
Klippel-Trenaunay Syndrome (KTS)
Klüver-Bucy Syndrome
Korsakoff's Amnesic Syndrome
Krabbe Disease
Kugelberg-Welander Disease
 
Kuru
 
 
 

L 

Lambert-Eaton Myasthenic Syndrome
Landau-Kleffner Syndrome
Lateral Femoral Cutaneous Nerve Entrapment
Lateral Medullary Syndrome
Learning Disabilities
 
Leigh's Disease
Lennox-Gastaut Syndrome
Lesch-Nyhan Syndrome
Leukodystrophy
Levine-Critchley Syndrome
 
Lewy Body Dementia
Lipid Storage Diseases
Lipoid Proteinosis
Lissencephaly
Locked-In Syndrome
 
Lou Gehrig's Disease
Lupus - Neurological Sequelae
Lyme Disease - Neurological Complications
 
 
 

M 

Machado-Joseph Disease
Macrencephaly
Megalencephaly
Melkersson-Rosenthal Syndrome
Meningitis
 
Meningitis and Encephalitis
Menkes Disease
Meralgia Paresthetica
Metachromatic Leukodystrophy
Microcephaly
 
Migraine
Miller Fisher Syndrome
Mini-Strokes
Mitochondrial Myopathies
Mobius Syndrome
 
Monomelic Amyotrophy
Motor Neuron Diseases
Moyamoya Disease
Mucolipidoses
Mucopolysaccharidoses
 
Multifocal Motor Neuropathy
Multi-Infarct Dementia
Multiple Sclerosis
Multiple System Atrophy
Multiple System Atrophy with Orthostatic Hypotension
 
Muscular Dystrophy
Myasthenia - Congenital
Myasthenia Gravis
Myelinoclastic Diffuse Sclerosis
Myoclonic Encephalopathy of Infants
 
Myoclonus
Myopathy
Myopathy - Congenital
Myopathy - Thyrotoxic
Myotonia
 
Myotonia Congenita
 
 
 

N 

Narcolepsy
Neuroacanthocytosis
Neurodegeneration with Brain Iron Accumulation
Neurofibromatosis
Neuroleptic Malignant Syndrome
 
Neurological Complications of AIDS
Neurological Complications Of Lyme Disease
Neurological Consequences of Cytomegalovirus Infection
Neurological Manifestations of Pompe Disease
Neurological Sequelae Of Lupus
 
Neuromyelitis Optica
Neuromyotonia
Neuronal Ceroid Lipofuscinosis
Neuronal Migration Disorders
Neuropathy - Hereditary
 
Neurosarcoidosis
Neurotoxicity
Nevus Cavernosus
Niemann-Pick Disease

NLD Non-Verbal Learning Disorder Syndrome
Normal Pressure Hydrocephalus
 
 
 

O 

Occipital Neuralgia
Ohtahara Syndrome
Olivopontocerebellar Atrophy
Opsoclonus Myoclonus
Orthostatic Hypotension
 
O'Sullivan-McLeod Syndrome
Overuse Syndrome
 
 
 

P 

Pain - Chronic
Pantothenate Kinase-Associated Neurodegeneration
Paraneoplastic Syndromes
Paresthesia
Parkinson's Disease
 
Paroxysmal Choreoathetosis
Paroxysmal Hemicrania
Parry-Romberg
Pelizaeus-Merzbacher Disease
Pena Shokeir II Syndrome
 
Perineural Cysts
Periodic Paralyses
Peripheral Neuropathy
Periventricular Leukomalacia
Persistent Vegetative State
 
Pervasive Developmental Disorders
Phytanic Acid Storage Disease
Pick's Disease
Pinched Nerve
Piriformis Syndrome
 
Pituitary Tumors
Polymyositis
Pompe Disease
Porencephaly
Postherpetic Neuralgia
 
Postinfectious Encephalomyelitis
Post-Polio Syndrome
Postural Hypotension
Postural Orthostatic Tachycardia Syndrome
Postural Tachycardia Syndrome
 
Primary Dentatum Atrophy
Primary Lateral Sclerosis
Primary Progressive Aphasia
Prion Diseases
Progressive Hemifacial Atrophy
 
Progressive Locomotor Ataxia
Progressive Multifocal Leukoencephalopathy
Progressive Sclerosing Poliodystrophy
Progressive Supranuclear Palsy
Prosopagnosia
 
Pseudotumor Cerebri
 
 
 

R 

Ramsay Hunt Syndrome I (formerly known as)
Ramsay Hunt Syndrome II (formerly known as)
Rasmussen's Encephalitis
Reflex Sympathetic Dystrophy Syndrome
Refsum Disease
 
Refsum Disease - Infantile
Repetitive Motion Disorders
Repetitive Stress Injuries
Restless Legs Syndrome
Retrovirus-Associated Myelopathy
 
Rett Syndrome
Reye's Syndrome
Rheumatic Encephalitis
Riley-Day Syndrome
 
 
 

S 

Sacral Nerve Root Cysts
Saint Vitus Dance
Salivary Gland Disease
Sandhoff Disease
Schilder's Disease
 
Schizencephaly
Seitelberger Disease
Seizure Disorder
Semantic Dementia
Septo-Optic Dysplasia
 
Severe Myoclonic Epilepsy of Infancy (SMEI)
Shaken Baby Syndrome
Shingles
Shy-Drager Syndrome
Sjögren's Syndrome
 
Sleep Apnea
Sleeping Sickness
Sotos Syndrome
Spasticity
Spina Bifida
 
Spinal Cord Infarction
Spinal Cord Injury
Spinal Cord Tumors
Spinal Muscular Atrophy
Spinocerebellar Atrophy
 
Spinocerebellar Degeneration
Steele-Richardson-Olszewski Syndrome
Stiff-Person Syndrome
Striatonigral Degeneration
Stroke
 
Sturge-Weber Syndrome
Subacute Sclerosing Panencephalitis
Subcortical Arteriosclerotic Encephalopathy
SUNCT Headache
Swallowing Disorders
 
Sydenham Chorea
Syncope
Syphilitic Spinal Sclerosis
Syringohydromyelia
Syringomyelia
 
Systemic Lupus Erythematosus
 
 
 

T 

Tabes Dorsalis
Tardive Dyskinesia
Tarlov Cysts
Tay-Sachs Disease
Temporal Arteritis
 
Tethered Spinal Cord Syndrome
Thomsen's Myotonia
Thoracic Outlet Syndrome
Thyrotoxic Myopathy
Tic Douloureux
 
Todd's Paralysis
Tourette Syndrome
Transient Ischemic Attack
Transmissible Spongiform Encephalopathies
Transverse Myelitis
 
Traumatic Brain Injury
Tremor
Trigeminal Neuralgia
Tropical Spastic Paraparesis
Troyer Syndrome
 
Tuberous Sclerosis
 
 
 

V 

Vascular Erectile Tumor
Vasculitis Syndromes of the Central and Peripheral Nervous Systems
Von Economo’s Disease
Von Hippel-Lindau Disease (VHL)
Von Recklinghausen's Disease
 
 
 

W 

Wallenberg's Syndrome
Werdnig-Hoffman Disease
Wernicke-Korsakoff Syndrome
West Syndrome
Whiplash
 
Whipple's Disease
Williams Syndrome
Wilson's Disease
Wolman’s Disease
 
 
 

X 

X-Linked Spinal and Bulbar Muscular Atrophy
 
 
 

Z 

Zellweger Syndrome

Some information has been gleaned from public domain sites and information. I have tried to credit that information to those sites that have allowed me to use their information. I would like to say t