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SITEMAP
Alphabetical listing of
most pages on this site: Exceptions
will be state and county pages. Some are not linked from
this sidebar but from within a page
The CP Links Page is
where you will find most Federal, State and local County pages.
THE HOMEPAGE
WHAT IS CP
CEREBRAL PALSY
My attempt to
clarify CP you may find the information provided by NINDS is more
specific and detailed
TREATMENT of CP
There are many
different treatments and I only name those I am familiar with
Physical
Therapy
How it
is essential to maintain range of motion
Occupational Therapy
How it is
essential to maintain quality of life
Speech Therapy
What I know through my
experience By far not even close to what you
should know
Medication and Orthotics
Again what
I know through experience Much more
can be had searching the net or talking with doctors and therapists
CP LINKS
To Federal, State, County, City / Town and School District WebPages.
Health links and hopefully links to local disability sites and activity and events calendars
just drill down to the page you want
Cerebral Palsy Glossary
Terms
used when referring to items related to CP . Many of us may see these on a
doctors report and not know what it really means.
More Information of CP provided by NINDS
Perhaps a bit more concise and informed than my attempt to tell
of what CP is.
What Causes Cerebral Palsy?
What are the Risk Factors?
Can Cerebral Palsy Be Prevented?
What Are the Different Forms?
What Other Conditions Are Associated With Cerebral Palsy?
How Does a Doctor Diagnose Cerebral Palsy?
How is Cerebral Palsy Managed?
What Specific Treatments Are Available?
Drug Treatments
Surgery
Orthotic Devices
Assistive Technology
Alternative Therapies
Are There Treatments for Other Conditions Associated with Cerebral Palsy?
Do Adults with Cerebral Palsy Face Special Health Challenges?
What Research Is Being Done?
Where can I get more information?
447 Specific Neurological
Disorders
Many of these 447 disorders do not fall under the
heading of CP but are disabilities nonetheless. Links to resources for all
447 My take on the IEP,
IDEA 2004 (Public Law 94-142 & Public Law 101-476), and the 504 plan.
In 1990, changes to Public Law 94-142 arrived through
the Education of the Handicapped Act Amendments of 1990 (Public Law
101-476). Most apparent was the law’s name change – instead of the
Education of the Handicapped Act, it is now called the Individuals with
Disabilities Education Act. IDEA 2004
IEP overview
A Guide to the Individualized Education Program with sections
highlighted and comments by me
504 plan & IDEA Q&A
Protecting Students and others with Disabilities also a
list of accommodations and modifications as would relate to the school
environment. More on accommodations in the Parent and Educator Guide
Appendix E
Parent &
Educator Guide of 504 Plan concepts and real life accommodations.
Drafted by the OSPI and 5 Puget Sound area School Districts but would be a
valuable asset to any fighting for their child's 504 accommodations
anywhere U.S.A.
IDEA 2004 summary&
Title 1 IDEA as written
(Public Law 94-142 & Public Law 101-476)
A lot of legalese and unless you are a lawyer or are
looking for specific law probably will not be of much benefit.
You will better spend your time reading the Parent and Educator
Guide, the IEP overview and the 504 plan & IDEA Q&A
Washington State Chapter 392-172 WAC
SPED special education and the IEP
This is Washington State law as
regards the IEP and special education
Also a bit about our (current
Nov 08) personal
battle for Amber
Pierce County Events
Local events for the disabled If you
know of any let me know I'll post them here
CONTACT US
DONATIONS/GIFTS
AMBER'S STORY
Amber's story from birth to I
started this website. Her continuing
story is in the Blog
AMBER'S PARENTS
A bit about us
and maybe you will get to know why we did what we did and continue to do
what we do by knowing a bit about us.
Blog of Amber and Family
The continuing story of
Amber and family updated as I have time.
SHARE YOUR STORY
This is different from
the Forums as the Forums are where you would post questions and answers.
In the share your story section people like you will post their
unique experiences and through what is said you may find you are not
alone. You may also find a friend and someone you can relate to. And
possibly a way to realize your own goals.
MEMBER
PAGES
Those who have joined with me to
try to educate everyone of the trials of having a child with CP or other
disability and where to find information
CP FAMILY LINKS
Websites created by people who
have CP or someone in their family has CP. Sites whose pages are not directly
disability related. Net-etiquette applies. All sites are subject to
approval. Banners and text allowed on these links.
DISABILITY
LINKS PAGE
These would be links to commercial
disability links pages where you may find more detailed information of specific
disabilities as well as commercial products and services for the disabled. Links are text only with a line or two of information of the link
posted..
NON CP RELATED
OTHER LINKS PAGES
Posted 1st come 1st served. We hope to have many of our friends
and supporters post their pages here. Net-etiquette applies.
All sites
are subject to approval. All Non-CP links are text only with a line or
two of information of the
link posted.
Please notify me of any broken links so I can
remove or fix them.
JOIN OUR NETWORK
Join with me in trying to educate the public of CP and other disabilities
WHY THIS SITE?
What motivated
me to build this site
CONTACT US
Direct your comments
to Robert.
Robert wrote a Science Fiction trilogy while being laid up. It took 4
years to complete and he has for sale Book 1 of the trilogy HERE
He is awaiting editing and copyrights on books 2 & 3 before
sending them to the publisher. Book 1 can stand alone and is a complete
novel of 237 pages and 135,000+ words in PDF format. Making Money Online (or not)
What I've tried and what I believe. The things to
watch out for. Many with disabilities have a very difficult
time working a 9 to 5 so working online is a viable alternative. However be wary
of those who will take your money and not deliver any worthwhile information.
Other sites I have or to be more precise
the wife has and I take care of. www.tamicraft.com www.vintageslips4u.com
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Some information has been
gleaned from public domain sites and information. I have tried to credit
that information to those sites that have allowed me to use their
information. I would like to say that most all governmental sites are
public domain and some private sites will allow use of their material so
long as credit is given to them for the information. I have tried to use
as much of my own knowledge and experience as possible to fill the pages
of this site but in order to provide you with as much information as I
can I have used some found elsewhere. When I have done so I will have
credited the information to a specific site. I can take no
responsibility to the accuracy of that information.
Some information of
cerebral palsy was gleaned from the National Institute of Neurological
Disorders and Stroke 'NINDS'
Some Information of the IEP,
IDEA 2004 and the 504 plan was gleaned from the U.S. Department of
Education and the Office of Civil Rights.
Most of the information on
this site is taken from my own years of research and visits with Doctors
and things I have learned through years of advocating for my daughter. I
cannot remember where each tidbit of information I know came from,
though I'm sure I have the therapists, doctors, school officials and a
myriad of other resources and people to thank for the knowledge I have.
If you have a web
presence we would appreciate your placing a link to our site on yours. If you
would care to do so here is our preferred link;
Cerebral Palsy Family Support Network
Dedicated to helping families find the support, resources and services they need.
And here is the code
for this link. Just copy and paste it to a simple text editor like notepad to
take out any garbage FrontPage put in and then paste it as you see it here to
your html.
<a href="http://www.cpfsn.org"><img
border="0" src="http://www.cpfsn.org/images/buttonsbglogosetc/cpfslogo.gif"
width="159" height="151" alt="The Cerebral Palsy Family
Support Network dedicated to helping support families with a Disabled Child and
or disabilities. Helping the disabled find resources and providing a place for
the disabled or their parents to congregate and have their questions
answered."></a><BR><b><font face="Arial,Helvetica"
color="#000000" size="4"><a href="http://www.cpfsn.org">Cerebral
Palsy Family Support
Network</a></font></b><BR><b><font face="Arial,Helvetica"
color="#FF0000" size="2"> Dedicated to helping families
find the support, resources and services they need.</font></b>
Thank You.
You may place a simple text link if you
wish.
Cerebral Palsy Family Support Network
Dedicated to helping families find the support, resources and services they need.
<b><font face="Arial,Helvetica" color="#000000" size="4"><a
href="http://www.cpfsn.org">Cerebral Palsy Family Support Network</a></font></b><BR><b><font
face="Arial,Helvetica" color="#FF0000" size="2"> Dedicated to helping families find the support, resources and services they need.</font></b>
Make a secure donation/gift through Paypal by clicking on the
link below:
Or you can make a donation manually by following one of the steps below.
Donations/Gifts are graciously accepted, Just log on to www.Paypal.com , Click "Send
Money" tab and follow the instructions to send money from an existing
Paypal account or by any major Credit Card. Use the email address below to
make a Donations/Gifts on Paypal.
If you do not see an email address it is because you need to enable
javascripts. The email is in javascript to foil the spambots.
You can also mail a Donation/Gift to
Tami Taormina
P.O. Box 4463
Spanaway, WA. 98387
Remember to follow the ‘GoldenRule’ and (life, fate, karma, God) may just reward you with a bit more happy days than sad ones.
Thanks
Robert and Tami
If you have a site that deals with any disabilities then consider either joining CPFSN.org (it is totally free) and having a link to your site on the appropriate page (e.g. State, County) as well as the ‘Members’ page and the disabilities links page.
Or doing a simple link exchange and having your site appear on the ‘CP Family’ links page, if you or your child has CP or any disability. Your site does not have to be about any disability so long as you or your child has a disability.
If you do not have a disability or a child with a disability but have a site devoted to any disability you can have a reciprocal link placed on the disability links page
If you do not have a disability or have a site devoted to any disability you can still have a reciprocating link placed on the Non-CP other links page. A link exchange would not only show your support of this site but would increase your ranking with search through having another outside link (SEO).
Use the ‘Contact Us’ page and email Robert if you are interested in any link exchange or joining CPFSN.org. Send the information of the site you want us to link to and the Title and information as well as the URL you would like entered. I cannot guarantee that all requests will be honored but I will take a personal look and make a fair and unbiased decision.
To speed up the process have a link to my site on yours and send me the URL. Our preferred links can be found on any of our links pages (left nav-bar)
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2007
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