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If you know of any local events either specifically designed for the
disabled or events that would be of interest to disabled persons Or
events and/or activities where the disabled get a discount please
send me the information. What the event is, place, date, time,
directions and any other pertinent information.
SITEMAP
Alphabetical listing of
most pages on this site: Exceptions
will be state and county pages. Some are not linked from
this sidebar but from within a page
The CP Links Page is
where you will find most Federal, State and local County pages.
THE HOMEPAGE
WHAT IS CP
CEREBRAL PALSY
My attempt to
clarify CP you may find the information provided by NINDS is more
specific and detailed
TREATMENT of CP
There are many
different treatments and I only name those I am familiar with
Physical
Therapy
How it
is essential to maintain range of motion
Occupational Therapy
How it is
essential to maintain quality of life
Speech Therapy
What I know through my
experience By far not even close to what you
should know
Medication and Orthotics
Again what
I know through experience Much more
can be had searching the net or talking with doctors and therapists
CP LINKS
To Federal, State, County, City / Town and School District WebPages.
Health links and hopefully links to local disability sites and activity and events calendars
just drill down to the page you want
Cerebral Palsy Glossary
Terms
used when referring to items related to CP . Many of us may see these on a
doctors report and not know what it really means.
More Information of CP provided by NINDS
Perhaps a bit more concise and informed than my attempt to tell
of what CP is.
What Causes Cerebral Palsy?
What are the Risk Factors?
Can Cerebral Palsy Be Prevented?
What Are the Different Forms?
What Other Conditions Are Associated With Cerebral Palsy?
How Does a Doctor Diagnose Cerebral Palsy?
How is Cerebral Palsy Managed?
What Specific Treatments Are Available?
Drug Treatments
Surgery
Orthotic Devices
Assistive Technology
Alternative Therapies
Are There Treatments for Other Conditions Associated with Cerebral Palsy?
Do Adults with Cerebral Palsy Face Special Health Challenges?
What Research Is Being Done?
Where can I get more information?
Specific Neurological
Disorders
Many of these do not fall under the
heading of CP but are disabilities nonetheless. My take on the IEP,
IDEA 2004 (Public Law 94-142 & Public Law 101-476), and the 504 plan.
In 1990, changes to Public Law 94-142 arrived through
the Education of the Handicapped Act Amendments of 1990 (Public Law
101-476). Most apparent was the law’s name change – instead of the
Education of the Handicapped Act, it is now called the Individuals with
Disabilities Education Act. IDEA 2004
IEP overview
A Guide to the Individualized Education Program with sections
highlighted and comments by me
504 plan & IDEA Q&A
Protecting Students and others with Disabilities also a
list of accommodations and modifications as would relate to the school
environment. More on accommodations in the Parent and Educator Guide
Appendix E
Parent &
Educator Guide of 504 Plan concepts and real life accommodations.
Drafted by the OSPI and 5 Puget Sound area School Districts but would be a
valuable asset to any fighting for their child's 504 accommodations
anywhere U.S.A.
IDEA 2004 summary&
Title 1 IDEA as written
(Public Law 94-142 & Public Law 101-476)
A lot of legalese and unless you are a lawyer or are
looking for specific law probably will not be of much benefit.
You will better spend your time reading the Parent and Educator
Guide, the IEP overview and the 504 plan & IDEA Q&A
Washington State Chapter 392-172 WAC
SPED special education and the IEP
This is Washington State law as
regards the IEP and special education
Also a bit about our (current
Nov 08) personal
battle for Amber
FORUMS (BBS)
Registration is required but please use the forums to ask and
receive answers as well as post your needs or what help you can provide
LIVE CHAT
MEMBER PAGES
Those who have joined with me to try to educate everyone of the
trials of having a child with CP or other disability and where
to find information
Pierce County Events
Local events for the disabled If you
know of any let me know I'll post them here
CONTACT US
DONATIONS/GIFTS
AMBER'S STORY
Amber's story from birth to I
started this website. Her continuing
story is in the Blog
AMBER'S PARENTS
A bit about us
and maybe you will get to know why we did what we did and continue to do
what we do by knowing a bit about us.
Blog of Amber and Family
The continuing story of
Amber and family updated as I have time.
SHARE YOUR STORY
This is different from
the Forums as the Forums are where you would post questions and answers.
In the share your story section people like you will post their
unique experiences and through what is said you may find you are not
alone. You may also find a friend and someone you can relate to. And
possibly a way to realize your own goals.
CP FAMILY LINKS
Websites created by people who have CP or someone in their family
has CP. Net-etiquette applies. All sites are subject to approval. Banners
and text allowed on these links.
NON CP RELATED
OTHER LINKS PAGES
Posted 1st come 1st served. We hope to have many of our friends
and supporters post their pages here. Net-etiquette applies.
All sites
are subject to approval. All Non-CP links are text only with a line or
two of information of the
link posted.
Please notify me of any broken links so I can
remove or fix them.
JOIN OUR NETWORK
Join with me in trying to educate the public of CP and other disabilities
WHY THIS SITE?
What motivated
me to build this site
CONTACT US
Direct your comments
to Robert.
Robert wrote a Science Fiction trilogy while being laid up. It took 4
years to complete and he has for sale Book 1 of the trilogy HERE
He is awaiting editing and copyrights on books 2 & 3 before
sending them to the publisher. Book 1 can stand alone and is a complete
novel of 237 pages and 135,000+ words in PDF format. Making Money Online (or not)
What I've tried and what I believe. The things to
watch out for. Many with disabilities have a very difficult
time working a 9 to 5 so working online is a viable alternative. However be wary
of those who will take your money and not deliver any worthwhile information.
Other sites I have or to be more precise
the wife has and I take care of. www.tamicraft.com www.vintageslips4u.com |
Pierce County WA.
Local Events and Activities for the
Disabled and
especially Kids with Cerebral Palsy & Other Disabilities
Not to be confused with the CPLinks page that will get you to Washington
State and the Pierce County Cerebral Palsy and Disability links . Those links would be for
governmental information and private advocacy groups located on the
cplinks page.
If you know of any local events either specifically designed for the
disabled or events that would be of interest to disabled persons Or
events where the disabled get a discount please
send me the information. What the event is, place, date, time,
directions and any other pertinent information.
It has been a few
months and none have come forward with information. I am truly sorry as I
am but one individual with a lot to do. I do not have time to seek out
this information and as I am not clairvoyant I must rely on individuals in
the community to make me aware of upcoming events for the disabled. You
will find some calendar of events on specific pages or shall I say links
but I do not have time to track down events and none
have told me of any. It is a shame for those who truly are interested in
having their child find friends and socially interact with others.
I'll Try to get the schedule for WA-Pave Inclusion
program meetings as my daughter goes to these meetings and thinks they
are fun and has found friends there.
You may also want to check the Pierce County links page
"specialty sites" (or drill down through CP
LINKS to get to it) as it lists some activity sites that have a calendar
of events.
Make a secure donation/gift through Paypal by clicking on the
link below:
Or you can make a donation manually by following one of the steps below.
Donations/Gifts are graciously accepted, Just log on to www.Paypal.com , Click "Send
Money" tab and follow the instructions to send money from an existing
Paypal account or by any major Credit Card. Use the email address below to
make a Donations/Gifts on Paypal.
If you do not see an email address it is because you need to enable
javascripts. The email is in javascript to foil the spambots.
You can also mail a Donation/Gift to
Tami Taormina
P.O. Box 4463
Spanaway, WA. 98387
ALL these pages are open to the public. As such you agree that you
are at least 18 years of age when submitting any posts. That you agree and
consent that any pictures you send are open source and that You will not
hold me or this site liable for any damages whatsoever. That any contact
you make with others through this site are solely your responsibility and
you in no way will hold this site or me or any person or entity liable in
any way for any damages that might occur by your use of this site and the
various posts, chat and forums available. If you do not agree to any of
these terms then do not use this site.
I cannot force
any to use the forums but I would encourage you to do so if you have
questions you would like answers to or have a statement you would like to
make. I know that having to register and using the anti-spambot code makes
you have to do one more step than most, but it also insures that the
forums are not bombarded by spambots posting crap on the site. I try to
check the forums at least weekly (often daily) and I have to say that so
far I am disappointed that none have chosen to take advantage of this free
opportunity to get and give information. I built this site to help the
disabled get information and the use of the forums and sharing your
stories is a huge part of that endeavor. Please help one another and I
will try to answer what I can as well. We are a community of the disabled
or parents of disabled children and we should do whatever we can to help
each other gain the upper hand or help each other cope with difficult
situations. Just go to the forums page and write down the answer to the
anti-spambot question and enter it on the registration page. You only need
do this once to have full access to the forums.
If you have a
site that deals with any disabilities then consider either joining
CPFSN.org (it is totally
free) and having a link to your site on the appropriate page (e.g. State,
County) as well as the ‘Members’ page or doing a simple link exchange
and having your site appear on the ‘CP Family’ links page, if you or
your child has CP or any disability.
If you do not
have CP or a child with CP or have a site devoted to any disability you
can still have a reciprocating link placed on the Non-CP related links
page. A link exchange would not only show your support of this site but
would increase your ranking with search through having another outside
link (SEO).
Use the ‘Contact Us’ page and email Robert if you
are interested in any link exchange or joining CPFSN.org. Send the
information of the site you want us to link to and the code you would like
entered. I cannot guarantee that all requests will be honored but I will
take a personal look and make a fair and unbiased decision.
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2007
-2008