Cerebral Palsy Family Support Network TM
Dedicated to helping families find the support services they need.

Cerebral Palsy Family Support TM

An article by Aaron Snyder

What is a goal? 

    To me a goal is a self sufficient road to happiness. To reach a goal you will have to go over many hurdles and even get knocked down a few times. But once you reach your goal you have set for yourself all of those hurdles and knock downs are worth it in the end.

    I do have cerebral palsy but that has never stopped me from setting goals for myself. My goal was to get a full time job in the media field whether it be radio, television or sound engineering. To do this I quit my part time job in radio and moved my life across the country to Orlando Florida to go to an audio engineering school where I learned about music production post production for film and anything else you could think of in audio. I finished the program in June of 2007. That same year I had to move back home with my parents because I hadn't found a job yet. 

 

 

Guidelines for Submitting an Article
If you submit an article to post on this or any other web we own, it will be assumed that you have read and agree to the terms and conditions as stipulated to in this section.


SITEMAP 

Alphabetical listing of most pages on this site: Exceptions will be state and county pages. Some are not linked from this sidebar but from within a page

The CP Links Page is where you will find most Federal, State and local County pages.

THE HOMEPAGE

WHAT IS CP
CEREBRAL PALSY

My attempt to clarify CP you may find the information provided by NINDS is more specific and detailed

TREATMENT of  CP
There are many different treatments and I only name those I am familiar with

Physical Therapy
How it is essential to maintain range of motion

Occupational Therapy
How it is essential to maintain quality of life

Speech Therapy
What I know through my experience By far not even close to what you should know

Medication and Orthotics
Again what I know through experience Much more can be had searching the net or talking with doctors and therapists

CP LINKS
To Federal, State, County, City / Town and School District WebPages. Health links and hopefully links to local disability sites and activity and events calendars just drill down to the page you want

Cerebral Palsy Glossary
Terms used when referring to items related to CP . Many of us may see these on a doctors report and not know what it really means.

More Information of CP provided by NINDS
Perhaps a bit more concise and informed than my attempt to tell of what CP is. 
What Causes Cerebral Palsy?
What are the Risk Factors?
Can Cerebral Palsy Be Prevented?
What Are the Different Forms?
What Other Conditions Are Associated With Cerebral Palsy?
How Does a Doctor Diagnose Cerebral Palsy?
How is Cerebral Palsy Managed?
What Specific Treatments Are Available?
Drug Treatments
Surgery
Orthotic Devices
Assistive Technology
Alternative Therapies
Are There Treatments for Other Conditions Associated with Cerebral Palsy?
Do Adults with Cerebral Palsy Face Special Health Challenges?
What Research Is Being Done?
Where can I get more information?

447 Specific Neurological Disorders
Many of these 447 disorders do not fall under the heading of CP but are disabilities nonetheless. Links to resources for all 447

My take on the IEP, IDEA 2004 (Public Law 94-142 & Public Law 101-476), and the 504 plan.
In 1990, changes to Public Law 94-142 arrived through the Education of the Handicapped Act Amendments of 1990 (Public Law 101-476). Most apparent was the law’s name change – instead of the Education of the Handicapped Act, it is now called the Individuals with Disabilities Education Act. IDEA 2004

IEP overview
A Guide to the Individualized Education Program with sections highlighted and comments by me

504 plan & IDEA Q&A
Protecting Students and others with Disabilities also a list of accommodations and modifications as would relate to the school environment.  More on accommodations in the Parent and Educator Guide Appendix E

Parent & Educator Guide of 504 Plan concepts and real life accommodations. Drafted by the OSPI and 5 Puget Sound area School Districts but would be a valuable asset to any fighting for their child's 504 accommodations anywhere U.S.A. 

IDEA 2004 summary&
Title 1 IDEA as written (Public Law 94-142 &
Public Law 101-476) 
A lot of legalese and unless you are a lawyer or are looking for specific law probably will not be of much benefit. You will better spend your time reading the Parent and Educator Guide, the IEP overview and the 504 plan & IDEA Q&A

Washington State Chapter 392-172 WAC SPED special education and the IEP
This is Washington State law as regards the IEP and special education
Also a bit about our (current Nov 08) personal battle for Amber

Pierce County Events
Local events for the disabled If you know of any let me know I'll post them here

CONTACT US

DONATIONS/GIFTS

AMBER'S STORY
Amber's story from birth to I started this website. Her continuing story is in the Blog

AMBER'S PARENTS
A bit about us and maybe you will get to know why we did what we did and continue to do what we do by knowing a bit about us.

Blog of Amber and Family
The continuing story of Amber and family updated as I have time.

SHARE YOUR STORY
This is different from the Forums as the Forums are where you would post questions and answers.
In the share your story section people like you will post their unique experiences and through what is said you may find you are not alone. You may also find a friend and someone you can relate to. And possibly a way to realize your own goals.

MEMBER PAGES
Those who have joined with me to try to educate everyone of the trials of having a child with CP or other disability and where to find information

CP FAMILY LINKS
Websites created by people who have CP or someone in their family has CP. Sites whose pages are not directly disability related.  Net-etiquette applies. All sites are subject to approval. Banners and text allowed on these links.

DISABILITY LINKS PAGE
These would be links to commercial disability links pages where you may find more detailed information of specific disabilities as well as commercial products and services for the disabled. Links are text only with a line or two of information of the link posted.. 

NON CP RELATED
OTHER LINKS PAGES
Posted 1st come 1st served. We hope to have many of our friends  and supporters post their pages here. Net-etiquette applies. 
All sites are subject to approval. All Non-CP links are text only with a line or two of information of the link posted.
Please notify me of any broken links so I can remove or fix them. 

JOIN OUR NETWORK
Join with me in trying to educate the public of CP and other disabilities

WHY THIS SITE?
What motivated me to build this site

  CONTACT US
Direct your comments to Robert.

Robert wrote a Science Fiction trilogy while being laid up. It took 4 years to complete and he has for sale Book 1 of the trilogy HERE

He is awaiting editing and copyrights on books 2 & 3 before sending them to the publisher. Book 1 can stand alone and is a complete novel of 237 pages and 135,000+ words in PDF format.

Making Money Online (or not) 
What I've tried and what I believe. The things to watch out for.  Many with disabilities have a very difficult time working a 9 to 5 so working online is a viable alternative. However be wary of those who will take your money and not deliver any worthwhile information.

Other sites I have or to be more precise the wife has and I take care of.

www.tamicraft.com 

www.vintageslips4u.com

 

 

The Process of finding a full time job: 

      Getting your foot in the door in the media or audio field isn't easy. I sent out countless resumes to every place I could think of around the country. I didn't care where I lived because I just wanted to be full time employed. In October of 2007 I get a call from a gentleman in Atlanta Georgia at a radio station asking if I was still interested in a job. This was the first call I had ever gotten and since I always think positive I figured I'd get the job. I had a phone interview with the producer in November of 2007 and it went really well. So I had my hopes set high to move down to Atlanta whenever they decided they needed me. 

   This is where I got knocked down the first time on my road to my goal. In February the place in Georgia went on a hiring freeze so I was back to square one. Months went by of frustrations of still living at my parents house and being unemployed. I want to make it clear that I love my parents but when you are 24 years old and living with them it really gets to you. 

    May of 2008 I applied at a place called Echostar and had an interview with them. I thought I had this job in hand but once again I would get knocked down and not get the job. So frustrated with being shot down too many times I stayed down for a while and quit looking for a while. During this whole time I would have at least two days in one week where I felt very down, frustrated and wondering if I was ever going to catch my break

 

Holidays and being unemployed:

      Before Thanksgiving came around I knew I couldn't take another year of being unemployed and living at my parents house so I decided to apply at KCWY tv news 13 in Casper Wyoming. I got a call from the chief engineer for to drive up for the interview. Once again the interview went well but this time I was 100 percent sure that I had the job in hand for a few reasons. They needed help because they were so short handed in the master control department. 

    They always say a third times a charm and this was the case. A week later he offered me a full time job as a master control operator. I haven't been there long but love working there already because it's a great group of people to work with and it is hard to call it a job. This brings me to my next issue I want to talk about.

 

Disability unemployment rate.

      Did you know that 70 percent of people with disabilities are un or under employed? They are probably sitting at home playing video games all day and being bored like I was for a year and a half. This is something that needs to change but it starts with the individual with a disability and their support staff if needed to go out and prove to employers that you can work. 

  I think a lot of people with disabilities are afraid to go out to the workplace because they feel they won't succeed or aren't good enough. Well guess what you're 100 percent wrong if you think that. Find your passion and make a living doing it. 

    The next step is for employers to look past the disability and look at them as human beings and future employees. My past employer and current employer did so I know this can all happen because I am living proof of it and that's what gives me hope to see people with disabilities to not be afraid to get employed. You feel better about yourself when you are productive 40 hours a week.

    Like I always say if you have a dream or a goal the only thing that is stopping you is yourself. Yes you will face battles along the way but they make you stronger in the end.

An article by Aaron Snyder

 

 

 

 

 

I'm not asking that you give out any personal information but it might be helpful to you to let whatever is on your mind out and it would be helpful to the readers of this site to have the benefit of your experience.

Your personal information would be held in the strictest of confidence. Only the signature you want will be posted. We allow up to 3 self-serving links in any signature file so long as they meet the
"Guidelines for Submitting Articles".

I have been quite open about our difficulties throughout this site. In doing so I would hope that others can avoid those obstacles we have had to overcome and take our lead on those we have won. Your stories could be of benefit to someone who is about to face what you once did. Please share with us what you will so that others can benefit from your story. 

If you would rather not speak of your own Disabilities perhaps in your dealing with CP you have gained some insight you might want to share in the form of an article. See the above link to guidelines for submitting articles for more information on how you can share your knowledge this way.

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If you have a site that deals with any disabilities then consider either joining CPFSN.org  (it is totally free) and having a link to your site on the appropriate page (e.g. State, County) as well as the ‘Members’ page and the disabilities links page.

Or doing a simple link exchange and having your site appear on the ‘CP Family’ links page, if you or your child has CP or any disability. Your site does not have to be about any disability so long as you or your child has a disability.

If you do not have a disability or a child with a disability but have a site devoted to any disability you can have a reciprocal link placed on the disability links page

If you do not have a disability or have a site devoted to any disability you can still have a reciprocating link placed on the Non-CP other links page. A link exchange would not only show your support of this site but would increase your ranking with search through having another outside link (SEO).
  
Use the ‘Contact Us’ page and email Robert if you are interested in any link exchange or joining CPFSN.org. Send the information of the site you want us to link to and the Title and information as well as the URL you would like entered. I cannot guarantee that all requests will be honored but I will take a personal look and make a fair and unbiased decision.

To speed up the process have a link to my site on yours and send me the URL. Our preferred links can be found on any of our links pages (left nav-bar)

 

 

 

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