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Cerebral Palsy Family Support Network TM
Dedicated to helping families find the support services they need for children with disabilities

The Cerebral Palsy Family Support Network dedicated to helping support families with a Disabled Child and or disabilities, disabled, cp, family support.

Cerebral Palsy Family Support TM

Dedicated to helping families with children who have Cerebral Palsy or any other Neurological and/or Learning Disability find the support, resources and services they need.

Washington State Links

     Most all State organizations will provide support for you at the local level. A lot of LINKS provide the same information. I've tried to just place those that are different in some way.

If you have information of any organizations or government agencies that are specific dealing with children with cerebral palsy or other neurological or learning disabilities, let me know and I will create a page for the links and link it to the County. Also any State links that are of significance let me know and I will post them here.
Within the County page you will find schools and other links That I have found
IF people are kind enough to send me an email with other links I will post them as well.

If you find any broken links or out of date stuff please send me an email. Broken links and out of date material do no one any good.
Washington State
SITEMAP 

Alphabetical listing of most pages on this site: Exceptions will be state and county pages. Some are not linked from this sidebar but from within a page

The CP Links Page is where you will find most Federal, State and local County pages.

THE HOMEPAGE

WHAT IS CP
CEREBRAL PALSY
 My attempt to clarify CP you may find the information provided by NINDS (below) is more specific and detailed

TREATMENT of  CP
There are many different treatments and I only name those I am familiar with

Physical Therapy
How it is essential to maintain range of motion

Occupational Therapy
How it is essential to maintain quality of life

Speech Therapy
What I know through my experience By far not even close to what you should know

Medication and Orthotics
Again what I know through experience Much more can be had searching the net or talking with doctors and therapists

CP LINKS
To Federal, State, County, City / Town and School District WebPages. Health links and hopefully links to local disability sites and activity and events calendars just drill down to the page you want

Cerebral Palsy Glossary
Terms used when referring to items related to CP . Many of us may see these on a doctors report and not know what it really means.

More Information of CP provided by NINDS
Perhaps a bit more concise and informed than my attempt to tell of what CP is. 

  • What Causes Cerebral Palsy?

  • What are the Risk Factors?

  • Can Cerebral Palsy Be Prevented?

  • What Are the Different Forms?

  • What Other Conditions Are Associated With Cerebral Palsy?

  • How Does a Doctor Diagnose Cerebral Palsy?

  • How is Cerebral Palsy Managed?

  • What Specific Treatments Are Available?

  • Drug Treatments

  • Surgery

  • Orthotic Devices

  • Assistive Technology

  • Alternative Therapies

  • Are There Treatments for Other Conditions Associated with Cerebral Palsy?

  • Do Adults with Cerebral Palsy Face Special Health Challenges?

  • What Research Is Being Done?

  • Where can I get more information?

447 Specific Neurological Disorders
Many of these 447 Neurological disorders do not fall under the heading of CP but are disabilities nonetheless. Links to resources for all 447

My take on the IEP, IDEA 2004 Public Law 94-142 & Public Law 101-476, and the 504 plan.
In 1990, changes to Public Law 94-142 arrived through the Education of the Handicapped Act Amendments of 1990 (Public Law 101-476). Most apparent was the law’s name change – instead of the Education of the Handicapped Act, it is now called the Individuals with Disabilities Education Act. IDEA 2004

IEP overview
A Guide to the Individualized Education Program with sections highlighted and comments by me

504 plan & IDEA Q&A
Protecting Students and others with Disabilities also a list of accommodations and modifications as would relate to the school environment.  More on accommodations in the Parent and Educator Guide Appendix E

Parent & Educator Guide of 504 Plan concepts and real life accommodations. Drafted by the OSPI and 5 Puget Sound area School Districts but would be a valuable asset to any fighting for their child's 504 accommodations anywhere U.S.A. 

IDEA 2004 summary&
Title 1 IDEA as written (Public Law 94-142 & Public Law 101-476) 
A lot of legalese and unless you are a lawyer or are looking for specific law probably will not be of much benefit. You will better spend your time reading the Parent and Educator Guide, the IEP overview and the 504 plan & IDEA Q&A

Washington State Chapter 392-172 WAC SPED special education and the IEP
This is Washington State law as regards the IEP and special education
Also a bit about our (current Nov 08) personal battle for Amber

Pierce County Events
Local events for the disabled If you know of any let me know I'll post them here

CONTACT US

DONATIONS/GIFTS

AMBER'S STORY
 Amber's story from birth to I started this website. Her continuing story is in the Blog

AMBER'S PARENTS
A bit about us and maybe you will get to know why we did what we did and continue to do what we do by knowing a bit about us.

Blog of Amber and Family
The continuing story of Amber and family updated as I have time.

SHARE YOUR STORY
In the share your story section people like you will post their unique experiences and through what is said you may find you are not alone. You may also find a friend and someone you can relate to. And possibly a way to realize your own goals.

MEMBER PAGES
Those who have joined with me to try to educate everyone of the trials of having a child with CP or other disability and where to find information

CP FAMILY LINKS
Websites created by people who have CP or someone in their family has CP. Sites whose pages are not directly disability related.  Net-etiquette applies. All sites are subject to approval. Banners and text allowed on these links.

DISABILITY LINKS PAGE
These would be links to commercial disability links pages where you may find more detailed information of specific disabilities as well as commercial products and services for the disabled. Links are text only with a line or two of information of the link posted.. 

NON CP RELATED
OTHER LINKS PAGES
Posted 1st come 1st served. We hope to have many of our friends  and supporters post their pages here. Net-etiquette applies. 
All sites are subject to approval. All Non-CP links are text only with a line or two of information of the link posted.
Please notify me of any broken links so I can remove or fix them. 

JOIN OUR NETWORK
Join with me in trying to educate the public of CP and other disabilities

WHY THIS SITE?
What motivated me to build this site

  CONTACT US
 Direct your comments to Robert.

Making Money Online (or not) 
What I've tried and what I believe. The things to watch out for.  Many with disabilities have a very difficult time working a 9 to 5 so working online is a viable alternative. However be wary of those who will take your money and not deliver any worthwhile information.

Other sites I have or to be more precise the wife has and I take care of.

http://tamicraft.com 

http://vintageslips4u.com

 

 

Washington State Homepage

Government:

Private:

 

  • Parents are Vital in Education (PAVE)
    PAVE     PAVE Based in Tacoma, WA. This is a statewide organization that purports to work with all disabilities. A lot of links. I have called them but they were unable to help with my particular situation dealing with a problem at school.     My daughter is on the mailing list and is involved with their community inclusion program. However I found their help in Pierce county to be somewhat wanting. I had better information and relations with their Spokane offices. Ask for Debbie in Spokane.

  • The ARC of Washington
    Advocates for the rights of people with disabilities. They have an incredibly long list of links.

  • The Fathers Network  
    Supporting Fathers of Children with special needs

  • Center for Change in Transition Services Sponsored by Seattle University

  • Columbia Legal Services (CLS) 
    Legal services for low income  (without assets). We don't qualify, even though we are low income according to Basic Health and our tax returns but as we have rentals they consider we have assets we can sell to pay for a lawyer. Never mind that selling even one rental puts us on welfare. If you are low income and need advocacy for your child or want legal representation on other matters give them a try.

  • Outdoors for All Foundation 
    2 Nickerson Street, Suite 101
    Seattle, WA 98109-1652
    Telephone: 206.838.6030 Fax: 206.838.6035 Hotline: 206.838.4995 Email: info@outdoorsforall.org
    Provides outdoor activities for disabled

  • Children's Hospital Critical Elements of Care
    Information and links to Cerebral Palsy and other disability resources

  • Medical Home Leadership Network
     Cerebral Palsy and other disabilities information and links

  • WithinReach ASK Line 1-800- 322-2588 
    Information and Referral Call Center on local providers who can answer questions about child development, evaluation and treatment services, free or low-cost health insurance, recreational opportunities, parent support groups and other information for children with special needs. 

  • PROVAIL
    One of the state's largest private, multi-service agencies dedicated to meeting the needs of people with all types of disabilities

  • Autism Society of  Washington 

  • Docs For Tots Washington State 

  • ParentHelp123 Children with Special Needs, Food assistance, Child Development, Parent Support, Family Planning, Child care

  • Pierce County Coalition for Developmental Disabilities This site has a resource guide that is very extensive and includes most State level offices

Education Resources State and Private:

Activities for children with special needs.

Summer camps for special needs kids listed here in the Pacific NW by www.cshcn.org

Summer camp list located here: Summer camps  for the disabled.

 

Counties In Washington State

The list of Counties will be linked to  a page I created for these links and many others I have found.

The main pages of each County can be sparse or overflowing with information. I would be interested in any links that are directed at the disabled dealing with medical assistance and any support or advocacy groups.

 

Click on the County Name below to go to a page with the County link on that page as well as Health Depts and city and town and school districts. And if I find any events and activities. Many Fairgrounds have events year round.

I need any links to disabled support, advocacy, health and info sites within a County even if it is just a support group. Please Send me those links.

Adams County
Asotin County
Benton County
Chelan County
Clallam County
Clark County
Columbia County
Cowlitz County
Douglas County
Ferry County
Franklin County
Garfield County ( Does not maintain their own website at this time)
Grant County
Grays Harbor County
Island County
Jefferson County
King County
Kitsap County
Kittitas County
Klickitat County
Lewis County
Lincoln County
Mason County
Okanogan County
Pacific County
Pend Oreille County
Pierce County   I live in Pierce County so it has the most links of any. Some of these links may be able to put you in touch with the right people in your county.
San Juan County
Skagit County
Skamania County
Snohomish County
Spokane County
Stevens County
Thurston County
Wahkiakum County
Walla Walla County
Whatcom County
Whitman County
Yakima County 

I hope you find the information on these pages useful. 

If you have information of any organizations or government agencies that are County specific dealing with children with cerebral palsy or other disabilities, let me know and I will create a link to the County. Also any State links that are of significance let me know and I will post them here.

If you would like to place a link to this site on your web here is our preferred link:

The Cerebral Palsy Family Support Network dedicated to helping support families with a Disabled Child and or disabilities. Helping the disabled find resources and providing a place for the disabled or their parents to congregate and have their questions answered.
Cerebral Palsy Family Support Network 
Dedicated to helping families find the support, resources and services they need.

And here is the code for the above link: Just copy and paste it to a simple text editor like notepad to remove the garbage FrontPage puts in, then paste it to your html.

<a href="http://www.cpfsn.org"><img border="0" src="http://www.cpfsn.org/images/buttonsbglogosetc/cpfslogo.gif" width="159" height="151" alt="The Cerebral Palsy Family Support Network dedicated to helping support families with a Disabled Child and or disabilities. Helping the disabled find resources and providing a place for the disabled or their parents to congregate and have their questions answered."></a><BR><b><font face="Arial,Helvetica" color="#000000" size="4"><a href="http://www.cpfsn.org">Cerebral Palsy Family Support Network</a></font></b><BR><b><font face="Arial,Helvetica" color="#FF0000" size="2"> Dedicated to helping families find the support, resources and services they need.</font></b>

You can use a simple test link if you'd prefer.

Make a secure donation/gift through Paypal by clicking on the link below:

Or you can make a donation manually by following one of the steps below.

Donations/Gifts are graciously accepted, Just log on to www.Paypal.com , Click "Send Money" tab and follow the instructions to send money from an existing Paypal account or by any major Credit Card. Use the email address below to make a Donations/Gifts on Paypal.

 

If you do not see an email address it is because you need to enable javascripts. The email is in javascript to foil the spambots.

You can also mail a Donation/Gift to 

Tami Taormina

P.O. Box 4463 

Spanaway, WA. 98387 

     

 

If you have a site that deals with any disabilities then consider either joining CPFSN.org  (it is totally free) and having a link to your site on the appropriate page (e.g. State, County) as well as the ‘Members’ page and the disabilities links page.

Or doing a simple link exchange and having your site appear on the ‘CP Family’ links page, if you or your child has CP or any disability. Your site does not have to be about any disability so long as you or your child has a disability.

If you do not have a disability or a child with a disability but have a site devoted to any disability you can have a reciprocal link placed on the disability links page

If you do not have a disability or have a site devoted to any disability you can still have a reciprocating link placed on the Non-CP other links page. A link exchange would not only show your support of this site but would increase your ranking with search through having another outside link (SEO).
  
Use the ‘Contact Us’ page and email Robert if you are interested in any link exchange or joining CPFSN.org. Send the information of the site you want us to link to and the Title and information as well as the URL you would like entered. I cannot guarantee that all requests will be honored but I will take a personal look and make a fair and unbiased decision.

To speed up the process have a link to my site on yours and send me the URL. Our preferred links can be found on any of our links pages (left nav-bar)

 

 

 

 

 

 

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