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Cerebral Palsy Family Support TM |
Cerebral Palsy
Family Support Network TM
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Cerebral Palsy Family Support TM |
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I would very much like for those of you who want to, to share your
Story. Whether it be a Rant of some problem you've encountered or difficulty
in your life to a Rave of some event or encounter that has given you
hope or in some way helped you cope with Cerebral Palsy or other major influence in
your life. Much of what we learn is through the successes and pitfalls
of others. Also most of us can relate to Rants and most like to hear of
Raves.
Guidelines
for Submitting an Article The CP Links Page is where you will find most Federal, State and local County pages. My attempt to clarify CP you may find the information provided by NINDS is more specific and detailed There are many different treatments and I only name those I am familiar withHow it is essential to maintain range of motion How it is essential to maintain quality of life What I know through my experience By far not even close to what you should know and Orthotics Again what I know through experience Much more can be had searching the net or talking with doctors and therapists CP LINKS Cerebral Palsy Glossary More Information of CP provided by NINDS Specific Neurological
Disorders My take on the IEP,
IDEA 2004 (Public Law 94-142 & Public Law 101-476), and the 504 plan. IEP overview 504 plan & IDEA Q&A
Parent & Educator Guide of 504 Plan concepts and real life accommodations. Drafted by the OSPI and 5 Puget Sound area School Districts but would be a valuable asset to any fighting for their child's 504 accommodations anywhere U.S.A. IDEA 2004 summary& Washington State Chapter 392-172 WAC
SPED special education and the IEP FORUMS (BBS)
MEMBER PAGES
Pierce County Events
AMBER'S STORY In the share your story section people like you will post their unique experiences and through what is said you may find you are not alone. You may also find a friend and someone you can relate to. And possibly a way to realize your own goals. Websites created by people who have CP or someone in their family has CP. Net-etiquette applies. All sites are subject to approval. Banners and text allowed on these links. NON CP RELATED All sites are subject to approval. All Non-CP links are text only with a line or two of information of the link posted. Please notify me of any broken links so I can remove or fix them. Join with me in trying to educate the public of CP and other disabilities What motivated me to build this site Direct your comments to Robert. Robert wrote a Science Fiction trilogy while being laid up. It took 4 years to complete and he has for sale Book 1 of the trilogy HERE He is awaiting editing and copyrights on books 2 & 3 before sending them to the publisher. Book 1 can stand alone and is a complete novel of 237 pages and 135,000+ words in PDF format. Making Money Online (or not) Other sites I have or to be more precise the wife has and I take care of.
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Your Cerebral Palsy or Other Stories of success or failure in fighting for your rights for / as a disabled person
I would very much like for those of you who want to, to share your Story. Whether it be a Rant of some problem you've encountered or difficulty in your life to a Rave of some event or encounter that has given you hope or in some way helped you cope with Cerebral Palsy or other major influence in your life. Much of what we learn is through the successes and pitfalls of others. Also most of us can relate to Rants and most like to hear of Raves. I'm not asking that you give out any personal information but it would be helpful to you to let whatever is on your mind out and it would be helpful to the readers of this site to have the benefit of your experience. Your personal information would be held in the strictest
of confidence. Only the signature you want will be posted. We allow up to
2 links in any signature file so long as they meet the
Decide where you want the story posted: Rants or Raves. I've broken these section up cause some people are not interested in the bitching and others are, some could care less of the successes and others live for them. You can post to either or both. I will create a page just for your story. I will post a link pointing to your story using the CAPTION: you provide such as *** Robbies Story: *** You can post anonymously or I can include any information you want such as name, address, email, phone and I can post any Pictures you may want to place on your page. Maximum of 4 pics. I will not edit your story but do have say as to whether I will post it or not. I would expect you to observe net-etiquette but If you deem it necessary to curse I will not edit it. These are your Stories, your words and your opinions. I take no responsibility for their content. I will not post links to other sites that are self-serving in the body of your story but will post what directly relates to your story. I will post a self-serving links in the signature file at the end of your story. I reserve the right to make other restrictions if they seem necessary but for now the space is yours to say what you want. The opinions expressed are yours and yours alone and we, this site and all connected with it assume no liability from anything you have expressed as your opinion. I would caution some restraint as you may incur a lawsuit for defamation if you name names or specific incidents. Your liability is yours alone. The limit on length will be 5000 words (or there abouts) This is about 8 pages in MS Word in font Times New Roman at font size 12. You can write a sentence, a paragraph, a page, or an 8 page short story. The choice is yours. When you send me the story do so as an attachment to an email. Make sure the attachment is exactly as you want your story to appear including any contact information or name you want posted. I will post the attachment NOT your email so if you want to give me special instructions or say something to me personally, do so in the email not the attachment. If you have pictures you want to post have them in .jpg or .gif format and send each as a separate attachment. I may have to resize the pic to fit the allotted space and/or increase load times for those on dialup. If you want them placed in a particular spot within the story make sure you make room and mark the spot so I can CLEARLY see where to place the picture. Number the picture in the attachment correspondingly. If you have a caption for the picture like : "My kids first Steps" CLEARLY indicate this is a CAPTION for PICTURE 1 and put it in the area you created for the placeholder of the picture. Any pictures sent but not indicated where they should be placed will be placed at the end of your story. A good example of what I would like: I want you to meet Robbie. My second child who has Cerebral Palsy/ Right Hemiplegia. ****PICTURE 1****& CAPTION: Robbie's first steps!**** Isn't he just the cutest thing you ever saw. This picture is of his first steps when he was a year old. Blah, Blah , Blah. *****PICTURE 2 & CAPTION: Robbie's first bike.***** We never thought Robbie would ever be able to ride a bike given his Right Hemiplegia but here he is on his first bike. We were so proud of him Blah, Blah, Blah. And so on. Now as to contact info. You can post anonymously and I will post no contact info. I will not post contact info unless you expressly ask me to AND have it in Your attachment. Several ways to get in touch with others. I'd love to talk with other parents who have a child with Cerebral Palsy. My handle is CPMOTHER. Look for me in the Chat rooms or Forums. I'm usually there 6 to 7 PM Eastern Time USA on Friday nights. Or I'd love to talk with other parents who have a child with Cerebral Palsy. My handle is CPMOTHER. Look for my post on the Forums page. Leave a message with time and date and we can get together in a Chat Room or talk through the Forums. Or I'd love to talk with other parents who have a child with Cerebral Palsy. My handle is CPMOTHER. My email is CPMOTHER @myisp.net Send me an email and we can arrange a time to get together in the Chat Rooms or we can just communicate through email. (Note if you give me an email I will place it into javascript Though this will hopefully keep the spambots from getting the address and loading up your inbox, I cannot and won't guarantee it. And won't be responsible for any damages. A sample of javascript email placed in the html code itself. One just needs to change emailname = "Donate" to your name and emailserver = "cpsfn.org" to your website or email ISP. I got the script free so you can copy it if you'd like. <script language="Javascript"> <!-- //this simple script by a1javascripts.com //please leave credit and instructions intact //simply enter your emailname and emailserver below //and copy and paste to entire script where you want it to show. emailname = "Donate" emailserver = "cpfsn.org" //change the font face, color and size below document.write("<font face='Arial,Helvetica' size=-1>"); document.write("<a href='mailto:" + emailname + "@" + emailserver + "'>"); document.write("<font color='ff0000'>"); document.write(emailname + "@" + emailserver); document.write("</a>"); document.write("</font>"); //--> </script> And it comes out looking like this on the page As you can see this breaks up your email so that spambots cannot read them as email addresses. The email address shows to those who look at the page, but a spambot cannot see this as an email in the code. Scripts must be enabled on your browser to see the email. Also many popup blockers will not allow scripts to run so you may need to allow popups to see the email. This is the way I've posted all my email addresses in this website. AND I do so here so you can send me those stories. Make sure to indicate posting under Rant or Rave (Venting or Success) Make sure you've included a CAPTION to link to or I'll just make one up. Guidelines
for Submitting an Article Send your stories to:
Make a secure donation/gift through Paypal by clicking on the link below:
Donations/Gifts are graciously accepted, Just log on to www.Paypal.com , Click "Send Money" tab and follow the instructions to send money from an existing Paypal account or by any major Credit Card. Use the email address below to make a Donations/Gifts on Paypal.
If you do not see an email address it is because you need to enable javascripts. The email is in javascript to foil the spambots. You can also mail a Donation/Gift to Tami Taormina P.O. Box 4463 Spanaway, WA. 98387 ALL these pages are open to the public. As such you agree that you are at least 18 years of age when submitting any posts. That you agree and consent that any pictures you send are open source and that You will not hold me or this site liable for any damages whatsoever. That any contact you make with others through this site are solely your responsibility and you in no way will hold this site or me or any person or entity liable in any way for any damages that might occur by your use of this site and the various posts, chat and forums available. If you do not agree to any of these terms then do not use this site.
I cannot force
any to use the forums but I would encourage you to do so if you have
questions you would like answers to or have a statement you would like to
make. I know that having to register and using the anti-spambot code makes
you have to do one more step than most, but it also insures that the
forums are not bombarded by spambots posting crap on the site. I try to
check the forums at least weekly (often daily) and I have to say that so
far I am disappointed that none have chosen to take advantage of this free
opportunity to get and give information. I built this site to help the
disabled get information and the use of the forums and sharing your
stories is a huge part of that endeavor. Please help one another and I
will try to answer what I can as well. We are a community of the disabled
or parents of disabled children and we should do whatever we can to help
each other gain the upper hand or help each other cope with difficult
situations. Just go to the forums page and write down the answer to the
anti-spambot question and enter it on the registration page. You only need
do this once to have full access to the forums. If you have a
site that deals with any disabilities then consider either joining
CPFSN.org (it is totally
free) and having a link to your site on the appropriate page (e.g. State,
County) as well as the ‘Members’ page or doing a simple link exchange
and having your site appear on the ‘CP Family’ links page, if you or
your child has CP or any disability. If you do not
have CP or a child with CP or have a site devoted to any disability you
can still have a reciprocating link placed on the Non-CP related links
page. A link exchange would not only show your support of this site but
would increase your ranking with search through having another outside
link (SEO). Use the ‘Contact Us’ page and email Robert if you are interested in any link exchange or joining CPFSN.org. Send the information of the site you want us to link to and the code you would like entered. I cannot guarantee that all requests will be honored but I will take a personal look and make a fair and unbiased decision.
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All email addresses are in javascript you need to have scripts enabled to see them.
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